Appropriate caregiving for brain cancer parent
My father was diagnosed with brain cancer about 10 months ago. It was insinuated by the doctors his life expectancy was going to be 6 months. He's lived with me and my family the entire time.
He gets home aid services through Medicaid/Medicare, which has been a huge help. Without it I doubt we would have gotten this far but our cramped living conditions and just having to deal with his situation daily is wearing out my family. I'm not even so sure it's best for him to be home anymore.
His condition is similar to Alzheimer's with the dementia and loss of memory. There is no pain and lucidity comes in waves that last a week or so. Still he can't make decisions and never knows the time or comprehend quantities. He's mentally disabled and physically weak but we still get him outside everyday. He's definitely depressed, as are we all.
I have investigated inpatient hospice centers in New York City area, like Calvary. It is a hospital, and they state he is not far enough along to accept him, and I agree, it's not the place for him right now.
From what I know of nursing homes, the individual is somewhat independent, and he cannot be left alone. I am wondering if finding a home that specializes in Alzheimer's care is the appropriate option.
I've repeatedly asked health workers and social workers what the options are and they never give me any information that seems helpful. Usually they tell me they don't know any options besides home hospice care or Calvary. There just seem to be no options and yet when I surf through http://ourparents.com, there seem to be options.
He is still getting treatment, because his condition has plateaued, and that must continue. I want him to get the right level of attention and of course I would still maintain my commitment to him and his health but my family also needs its life back.
I'm reaching out to some nursing centers through consultants but I'm really not sure what my options are. I really feel like I shouldn't be this confused but I can't seem to get the right answers anywhere.