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ALS/ Lou Gehrig's Disease
Caring for someone with ALS has its own challenges and blessings. Come get help with ALS-related matters and be part of a community that cares about you.
Help spread the support to more people in need -- Please tell a friend or two. Thanks!
What's New Today
I just got diagnosed with ALS 10/13/2014. I had been having symptoms for 6 months prior to this. I finally got to August Ga and saw Dr. Rivner. He spent 3 hours with me doing test and he determined that it is ALS. I go on Oct 28 for muscle biopsy and already started on meds for this. I am still in shock over this and I just wanted to know if there is others on this site with this to. Thanks and God bless.
I recently published my article on newly researched natural medicinal plants and their potential for treatment of ALS and other neurodegenerative diseases. It can be found at: http://ayahuascatreatment.wordpress.com/2014/09/01/ayahuasca-ethnobotanical-medicine-for-treatment-of-als/ It is the culmination of several years work, having studied ethnobotanical medicine in the sea... more
My husband was diagnosed with ALS in March. In May, he received a secondary diagnosis of frontal lobe dementia. I have been searching for other caregivers who are dealing with both ALS and dementia, or even a support for this combination together.
I dont know how to cope or handle this. My precious mother, the only person I have in my life was diagnosed with ALS today. We have been fighting for a year with doctors trying to find out what was wrong. Today we got the diagnosis. I dont know what to do from this point or how to help her. She is 76. He is in poor health and I am crippled.I am her only child(adult) and she ke... more
The momentum of Ice Bucket Challenge continues and 94.3 million dollars have been raised. We would like to hear your thoughts, experiences, and stories on this phenomenon that is sweeping the nation.
When my husband and I made out our will years ago, we both stated that we wouldn't want any extraordinary means taken to prolong our lives if there was no hope of recovery. How does this "end of life" instruction apply to ALS caregiving? If someone is being tube fed and on a respirator, would that contradict the instructions in his will? Just wondering.
I'm overwhelmed by the amount of work taking care of my husband has become. It seem I have no time for myself.
I am weepy but need to hold it in, so I don't upset my husband who was diagnosed 2 weeks ago. I just don't know how to get these feelings out and I feel tied up in knots most of the time. He doesn't want to tell friends what he has, so therefore I can't. What can I do?
I have a close friend with ALS....in a nursing home where she has her basic needs taken care of, but no extras. Our group of friends help a lot, but I was wondering what more we can do other than visit. Is massage good? and also, she needs a more functional wheelchair, where can we go for help for her?
WHAT CAUSES ALS