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ALS/ Lou Gehrig's Disease
Caring for someone with ALS has its own challenges and blessings. Come get help with ALS-related matters and be part of a community that cares about you.
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I found April 13, 2013, I Have ALS
my dad was diagnoised Dec 12,2013 is 88 and is going down hill super fast. I'm worried I may get ALS too. What are the chances of that. I'm 43 yr old daughter.
im 35 yrs old I have 2 boys a 15 yr old with autisim and preder-willi syndrome and a 14 yr old that's just your normal teenager. we live with my parents my mom 61 yrs old with als and a 84 yr old father with the 1st stages of dementia. im everyones caregiver plus trying to get our financial together I do have family but I feel like isn't there for us.everyones making me make the disision my mind is always going I don't sleep please someone help
my husband has ALS and is on a TRACHEA /VENT he is currently in the VA. Louisville Ky hospital and the VA will not let him come home unless we had home health care in place, they said they cannot get home health care staff until 3 to 4 weeks from now. But the VA says he is stable enough to be discharged to wherever but won't let him come home so I have to pick one of their res... more
signs when arms start to go
My husbands hospital bed got delivered yesterday, it was sad, I still can't believe this is happening! He is grumpy right now and I am very tired this disease makes no sense or has not rhyme or reason to me.
Everyone talks about time for yourself.........after taking care of my husband with ALS, we have 4 children at home that I need to take care of. How can I possibly find time for me? Family is hours away, and friends have busy lives of their own.
Those of you caring for a loved one with ALS . . . what have you done recently to take care of yourself?
Today is the 5 year anniversary of my father's passing from ALS. I find myself thinking about how brave he was, how strong and kind. When he was sick and deteriorating, heartbroken and miserable, I thought that ALS was the worst curse I'd ever seen. As time has passed, I still think ALS is a curse... but in some ways it's a blessing, too. It gave me two years to say goodbye... more