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ALS/ Lou Gehrig's Disease
Caring for someone with ALS has its own challenges and blessings. Come get help with ALS-related matters and be part of a community that cares about you.
Help spread the support to more people in need -- Please tell a friend or two. Thanks!
What's New Today
I dont know how to cope or handle this. My precious mother, the only person I have in my life was diagnosed with ALS today. We have been fighting for a year with doctors trying to find out what was wrong. Today we got the diagnosis. I dont know what to do from this point or how to help her. She is 76. He is in poor health and I am crippled.I am her only child(adult) and she ke... more
The momentum of Ice Bucket Challenge continues and 94.3 million dollars have been raised. We would like to hear your thoughts, experiences, and stories on this phenomenon that is sweeping the nation.
When my husband and I made out our will years ago, we both stated that we wouldn't want any extraordinary means taken to prolong our lives if there was no hope of recovery. How does this "end of life" instruction apply to ALS caregiving? If someone is being tube fed and on a respirator, would that contradict the instructions in his will? Just wondering.
I'm overwhelmed by the amount of work taking care of my husband has become. It seem I have no time for myself.
I am weepy but need to hold it in, so I don't upset my husband who was diagnosed 2 weeks ago. I just don't know how to get these feelings out and I feel tied up in knots most of the time. He doesn't want to tell friends what he has, so therefore I can't. What can I do?
I have a close friend with ALS....in a nursing home where she has her basic needs taken care of, but no extras. Our group of friends help a lot, but I was wondering what more we can do other than visit. Is massage good? and also, she needs a more functional wheelchair, where can we go for help for her?
WHAT CAUSES ALS
HI I'M KNEW TO THIS. WE JUST FOUND OUT MY FATHER HAS ALS. PLEASE HELP ME TO UNDERSTAND THIS PLEASE.
My sister was diagnosed with ALS in August, 2013 - after a year of doctor visits. She has said she does not want visitor's, which also includes me, my sisters and my mom. She does not want us coming to her house. She cannot speak, has had a peg tube since last Christmas, has lost use of her hands and arms, and is wheelchair bound. Her 2 youngest children, her husband and mo... more
Oh my god i dont' think I can take this another minute! i amso tired and over whellmed. I am trying to finish my degree so I am taking a full time load this summer plue care for my husband. Our adult children are tired but hanging in there. My husband gets so frustrated that he can't talk that he just screams at us when we don't understand him. A few weekends ago I finally sai... more