Do you think your parents planned you to be their caregiver?
Wow, no feedback? Thanks everyone. And a sincere thanks for the guy who sent me a hug.
Hello MMJ, Thank you for posting your question. If you are taking care of a loved one with Alzheimer's or Dementia, you may consider joining Steps and Stages, which is a resource that provides family caregivers with expert guidance and community support specific to their loved one's stage of Alzheimer's or Dementia.
You may also find support in our forums of caregivers at www.caring.com/forums
I am very sorry you are going through this. Some of the demands by your parents rings true to me. Like you, I thought about all the caregivers whose dutifulness were taken for granted and they ended up without lives of their own and I wanted to avoid that for myself. As tough as it may be, you must try to do things that you enjoy and try to squeeze them in. I had to demand it of myself. Caregiving to elderly parents is one of the toughest jobs. My mother just passed away last month, but I still have to look after my father. He is 91 years old. Though the doctor says he should be on a restricted low-sodium, low-fat diet, he has never followed it, and he is still going strong. For my mother, who followed this same diet, I would form a relation with local restaurants and instruct them to prepare take-outs with no salt, little oil. They were happy to do this. You may want to consider doing this instead of making all the meals from scratch. Who knows, maybe your father would like the "variety". Perhaps even try, "I'm going out to see a friend, or see a movie". It will do you good, I think. My prayers are with you.
My father doesn't have Alzheimers or any dementia, but refuses to do anything but write checks for bills, eat, read the paper, and watch tv (NY1 news and Andy Griffith on an endless rotation so loudly that earplugs don't help). Thank you for the idea of checking out cooperative restaurants! We certainly have enough around here. Most all of my friends are now living out of state. I used to visit them all the time, but can't get away for even an overnight. He used to take the dog out in the morning, and I would sleep, because I would do housework when he was asleep, because it was quiet. Now I have to wake up early to take the dog out, and the tv is blasting when I return. I'm up late and up early, and the earplugs aren't strong enough to create silence. We had a water failure which drenched 2 floors, and I have to handle everything, along with the daily stuff. I told him that likely I'll die before he will, and he said "no you won't'. I said I'm doing too much and have no sleep, and he started talking about something else. He doesn't want to hear it. I'm starting to give away hobby materials, and sorting out who gets what for a will. No time to use the hobby stuff, and the only place I feel is mine (bedroom) is too cluttered because by the time I finish with the daily work, I'm too weary to clean. And there's no area left to even sort anything. I'm unemployable due to chronic pain from multiple herniated disks, so this is pretty much it. Probably when the dog dies of old age, I'll follow. I'm severely burned out, but realize there are people in far worse situations.
Please hold off from giving away your hobby stuff. It takes so long to collect the supplies or tools and at older prices that if/when you have enough creative energy to even think about them, you may be glad that you saved them. You can always give them away later. It is not surprising your dad's comment. He sounds ornery. Still, I believe that when you tell him you are going out (for mental break), he'll eventually get used to it. It will be an emotional investment for yourself. You have earned this long ago.
Hello Anonymous, Thank you for posting your thoughts and caregiving challenges. Consider visiting a few of our other resources, which may be helpful to you in your quest for support:
- How to Avoid Caregiver Burnout
- How Can I Tell the Difference Between the Normal Stress of Caregiving and Depression?
- When no one will help
- The Emotion Nobody Talks About (article)
Please let us know if we may help you find additional resources to help you take care of yourself through your caregiving journey, we will be glad to help in any way we can.

