How can I help my husband while traveling without telling out tour group about his Alzheimer's?

2 answers | Last updated: Oct 05, 2011
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deel asked...
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Caring.com User - Joanne Koenig Coste
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Joanne Koenig Coste is a nationally recognized expert on Alzheimer's care and an outspoken advocate for patient and family care. She is the author...

I have a friend who, like you, cares for her husband with AD and, facing the same issues you mention, travels with him as much as possible...with one major exception. See also:
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My friend wrote a note to fellow travelers explaining that hubby has AD and stated that "Bill loves to chat about the Boston Red Sox and was a former plumber who loves telling 'plumbing jokes'. Even though he may not remember your name or recall he met you several moments ago, he thoroughly enjoys being with people and benefits greatly from your interaction with him. If Bill looks lost, could you please guide him back to cabin 12 on the upper deck...I will be waiting. Thank you for helping us." Might I suggest you try a similar approach. My friend realized that fellow travelers knew something was not right with Bill but had no idea what to expect. She received many positive responses and tremendous support once she shared his diagnosis. Meanwhile, let him eat what he chooses - feed him the 'good stuff' when you get home! Take care of YOU! Might I suggest you try a similar approach. My friend realized that fellow travelers knew something was not right with Bill but had no idea what to expect. She received many positive responses and tremendous support once she shared his diagnosis. Meanwhile, let him eat what he chooses - feed him the 'good stuff' when you get home! Take care of YOU!

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deel said...

Thank you! I have a copy of your book, which is tremendously helpful. Last year, my husband was quite adamant about letting people know of his dementia. Understandable. But, I am a different sort, and since I am the one getting all the headaches, how I wished I shared his problem with the group when we toured Europe last year! I know what you mean about positive responses. My husband plays tennis once a week with a senior league and at some point after I've seen the wondering eyes and perhaps thoughts with some off/odd things happening on court during the game,I drafted a nice letter, passed it through my husband for approval and when he okayed it, I e-mailed it to the group. It was a big relief for me, and him. Great understanding responses, and a few were happy I shared his diagnosis with them. A man even shared his problem. They were mostly supportive. Yes, I let him eat what he wants now. Thank you!

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