This is such an important question as the care of people with non-AD dementias can vary enormouisly from care of someone with Alzheimer's. Not only are the symptoms different, but medical approaches must be appr4oached differently. A dementia is not a dementia is not a dementia.
As someone recommended the Lewy Body Disease Association, there are online and "live" support groups for other dementias. The probalem is we don't know the illness affecting your loved one In addition to Lewy Body support there is support for people with frontotemporal dementias. There are a gorwing number of live support groups throughout the US. They meet loosly through the Association for FTD (www.theaftd.org/). There is also an FTD support site. If you Google that term you will find it. Finally Yahoo has a numer of FTD support groups online (I own one).
Those are the two most common non-AD dementias. If you need help for another diagnosis (CBGD, PSP, visual variants, progressive aphasias, etc, please write back and tell us. If your loved one has vascular dementia it can present similar enough to AD or FTD to attend thoise meetings.
Geri R Hall, PhD, ARNP, GCNS, FAAN
Advanced Practice Nurse
Banner Alzheimer's Institute