How can I get my mother to remember that my sister and I are visitng her home, not the other way around?
WOW! First of all, I want to complement you on the heroic effort you and your family are putting into your parents' care. Please don't be so hard on yourself Debbie but try instead to focus on the monumental task of caring that you have been successfully managing for a very long time. Of greatest importance is the manner that you diffuse Mom's constant worry about whose home she is in and when you & others will be leaving. Hubby's instincts to make-up a story, although counterintuitive to you, are right on target! Your mom does not have the ability to reason through explanations so trying to reason simply will not work but fabricating an answer that makes her content, if even for a moment, is the best approach. It buys time and it takes away the anxiety that she associates with you leaving. I call these therapeutic lies 'FIBLETS'- tiny fibs that turn a negative emotion into a positive one. Your response of "my home is your home" is wonderful and I'm sure it's effective. Her lack of storage space in her brain's memory-center means that most of the information you give her will not be stored and therefore not recalled; combine this with little sense of time (day, season, hour, etc) and it's easier to see why she behaves as she does. You have a daunting caregiver role related to your mom's long history of apparent psych issues and your need to separate these problems from the progression of her dementia...which is which? It is a good idea to have her meds evaluated as efficacy may change with the progression of dementia. I think you will be most successful if you concentrate on the manifestations of Alzheimer's; the use of fiblets can play a truly satisfying part in making your time with mom the very best it can be. Keep focused on the goal of making each moment as pleasant as possible. You will be amazed at how quickly happy moments become days when you learn to diffuse negative situations by simply saying what mom wants to hear. It does take a little practice but I know from your letter that you can do this! I hope you can have a family meeting to discuss other care options for your parents. Someone needs to take control over these heart-wrenching decisions. Do not think about what mom or dad would have wanted when they were both well-functioning, but instead focus on the best care, physical and emotional, for each of them while at the same time saving you and your sisters. Please take care of you. Of greatest importance is the manner that you diffuse Mom's constant worry about whose home she is in and when you & others will be leaving. Hubby's instincts to make-up a story, although counterintuitive to you, are right on target! Your mom does not have the ability to reason through explanations so trying to reason simply will not work but fabricating an answer that makes her content, if even for a moment, is the best approach. It buys time and it takes away the anxiety that she associates with you leaving. I call these therapeutic lies 'FIBLETS'- tiny fibs that turn a negative emotion into a positive one. Your response of "my home is your home" is wonderful and I'm sure it's effective. Her lack of storage space in her brain's memory-center means that most of the information you give her will not be stored and therefore not recalled; combine this with little sense of time (day, season, hour, etc) and it's easier to see why she behaves as she does. You have a daunting caregiver role related to your mom's long history of apparent psych issues and your need to separate these problems from the progression of her dementia...which is which? It is a good idea to have her meds evaluated as efficacy may change with the progression of dementia. I think you will be most successful if you concentrate on the manifestations of Alzheimer's; the use of fiblets can play a truly satisfying part in making your time with mom the very best it can be. Keep focused on the goal of making each moment as pleasant as possible. You will be amazed at how quickly happy moments become days when you learn to diffuse negative situations by simply saying what mom wants to hear. It does take a little practice but I know from your letter that you can do this! I hope you can have a family meeting to discuss other care options for your parents. Someone needs to take control over these heart-wrenching decisions. Do not think about what mom or dad would have wanted when they were both well-functioning, but instead focus on the best care, physical and emotional, for each of them while at the same time saving you and your sisters. Please take care of you.
