What's the best way to handle criticism about the Alzheimer's care I'm giving my mom?


I've been caring for my 74-year-old mother, who suffers from Alzheimer's, for several years now, and some days it's difficult not to become frustrated with her. This has happened a few times when relatives were visiting, and they've given me some grief about not being more understanding with her. How do I deal with this unwarranted criticism?

Expert Answer by Beth Spencer

Helpful?
11/13
found this answer helpful.

It's very common for people who aren't the primary caregiver to be critical -- they often have no idea how hard day-to-day care is. So I try to make sure everyone in the family understands what all the tasks involved are. At the same time, I try to help the caregiver identify what the specific criticisms are, what their cause is, and whether there's anything that could change.

One useful idea for both sides is to ask the critical family members to give you some respite, maybe for a couple of days while you go out of town. They should begin to understand the kinds of difficulties you cope with daily.

Be aware, though, that people with early dementia who still have good social skills often rise to the occasion in these situations. They may be able to function very well for limited periods, leading the relief caregiver to underestimate the actual level of impairment. What's more, the effort is usually exhausting for the patient, who may fall apart after company leaves. Two or more relief stints might be needed.

Some discord happens because relatives have differing values. Maybe your siblings want to boost your mom's independence, and you feel she needs more supervision and hands-on care, or vice versa. Family members may have different tolerances for risk as well, and that may inform what they think needs to be done. An honest discussion of each person's perspective -- including the unspoken "shoulds" and "shouldn'ts" we each carry -- can help all of you.

When you're at an impasse, or if you find it hard to communicate on your own, consider asking an impartial party to lead a family meeting to talk about these issues in a neutral setting. Many Alzheimer's Association chapters have individuals who are available to lead these meetings, as can social workers, geriatric care managers, ministers, and rabbis.

Answer

Helpful?
9/9
found this answer helpful.
How disheartening for you to feel like you're giving so much of yourself towards your mom's care only to be criticized by family members. Depending on your trust level with them, maybe the best way to handle their comments is with a heart-to-heart. "Aunt Jane, I'm sorry it pains you to see me get frustrated with mom. It pains me too when I get frustrated with her. Sometimes I feel like the best remedy would be for me to take a break. Would you be willing to spend some time with mom while I regroup. It would really help me give my absolute best to mom, which we both agree she deserves." If Aunt Jane feels strongly about the criticism she's dished out and is physically able, hopefully she will, indeed, give you some help. If she is unable or unwilling, perhaps she'll hush. Another idea is to tell our theoretical Aunt Jane that you're doing the absolute best you can and while you're always open to new information of suggestions, you simply can't bear criticism that isn't constructive. Best of luck to you!
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