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Poll: Do your siblings/family help enough?

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With regard to giving care, in any capacity, to your parents, do you feel as though your siblings and/or family help enough?  I'm wondering if the majority of us feel some resentment or quite content.  You can simply post "yes" or "no", but please feel free to add any comments! 

Thanks for your participation!

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Missy has received 1 hug for this post

Hugs Karen Cyr


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Hi Missy,

I took care of my grandparents alone..At first I was resentful of them for not putting forth any effort to help me..I had to quit my job because they required so much help..I guess you could say I was lucky to be able to quit but at the time it didn't feel that way..I loved my work and with a little help I could have kept working..

After a while I wasn't resentful anymore..I really got to a point that it was normal to do everything I did..

You have to keep in mind that I cared for them for 21 years so that makes a huge difference I think..


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Hi Missy,

Thank You for the opportunity to vent!  My family consists of my Mother who has COPD, Autoimmune Hepatitis, and Myelodysplasia.  My brother was in a motorcycle accident in 1995, his right arm was amputated, and he has chronic pain due to brachio plexus injury to his spinal chord.  His pain medications  cause loss of memory, inability to reason simple problems, he forgets to eat and care for himself.

I love my mother and brother more than my life itself, but there are days when I want to go out into our backyard and scream til I have no voice left.  My mother's illnesses are not her fault, its the hand she has been dealt.  But I am angry that she is sick. I am angry that these diseases (COPD and Myelodysplasia) could take her life, so I enjoy every moment with her that I can.  She and I get along "like two peas in a pod" as the saying goes.

But my brother knew when he left that New Years eve party on a rainy night, he shouldve stayed.  His decision has effected both my Mom's life and mine. Taking care of Mom is difficult enough, but (God Forgive Me) sometimes I resent having to take care of my brother.  I resent it and I feel guilty and helpless.  I am grateful that there are days when he can leave the house and go to his friends, if anything it gives Mom and I peace for awhile.  My brother and I get along together, but we are as different as night and day... He sleeps most of the day away, and is up and awake most of the night... Well, caregiving gets overwhelming when I am awake during the day to care for Mom, and awake part of the night caring for him as well. 

I am here caregiving my family on my own.   Somedays, it feels quite a lonely place to be in this life.  I have no other family to help.  I feel like I'm losing my sanity due to the stress.

I feel so guilty that I feel so much resentment.  I don't have a life outside of caregiving for my family.  Its beginning to take it's toll on me.  I realize I need to get out on my own but its very difficult when someone wants to be near you all day everyday...Anyway...

Its an honor that God sees me as someone strong enough to deal with this situation.  Mom has always told me " If you think you have it so bad...There is someone out there in the world who wishes they're life was/is as easy as yours."  I pray for those who are caregiving to their loved ones, it makes me feel like I'm not the only one."


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Oh Sonni, you've got so much on your plate. How could you not feel resentful sometimes? Sure, there are other people whose lives are difficult, but that fact doesn't minimize your burden -- nor should it invalidate your feelings.

I just read your responses to robb, another caregiver whose mother has COPD, and I was almost moved to tears. You gave such insightful advice about carving out time for yourself...please heed your own words and don't give into your guilt! Getting out on your own is essential.

You can think of it as necessary self-care: if you don't nourish and replenish yourself, you won't be able to care for your family.

Much love to you.


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absolutely NOT!  What they do, do is come up with the most creative excuses & i'm sorry.  Then they tell me how they'd like 5minutes alone or how tired they are. Mom was living with my sister who passed away in june, this year.  So without us (me & my sister&brother) knowing she moved in with our younger bro.& his wife.   No consideration at all to driving distances, i am 100mi away( & have aways driven to take my turns)  well, long story short,  mom kept asking where her check went. barb(my sister) & i thought it was odd that when she came to visit, she had no $. When she was living with my late sister, she always had $ so she could shop, or go out to eat.  and her food stamp card so she could buy something special if she wanted to. ( don't worry , we didn't make her go with out) . After a few times, we looked into it & found that they had a really good time with her check book-to the tune of 8000.00, wiped out all of her foodstamps,(& didn't bother to recert so she lost them)  Aug.14th, she called me & said please come & get me , i can't stay here.  so i did.  the plan was for my sister barb, to get an apartment big enough for mom, because thats where mom wants to be.  mom had another stroke, & has been doing rehab (at home) since sept.  My whole life is upside down.  i am stuck at our cottage 100 miles from my home, because thats where it happened.  This is so hard,  i feel like i am working at a nursing home.  I love my mom very much, but i am a 2x breast cancer survivor 57ys old.  where are these people who wanted her to move in or help out?  Momsma

 


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I am new here. I am my mother in laws caregiver. No one in her family calls or comes to help. They dropped by without calling last week. (without so much as a call in three months since I moved her here from the nursing home) Not one offer to take her out to lunch or sit with her for a bit to give me a break. I have aids coming 4 days a week for four hours a day. That is not a break because I am still bothered about things the whole time an aid is here. I have told them to pretend I am not here. No such luck. I am supposed to have an aid 7 days a week but of course that doesnt happen. God forgive me, but there are times I dont even want to hear or see my mother in law. I took her in because nobody else would. She cant even use the restroom anymore and changing her gets to be a pain in the neck. I have a 13 year old daughter, an 8 year old son, and a husband. I am so tired and nobody around me understands. I feel sooooo bad when I voice how I feel so I rarely say anything about it.


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Hi ladies,

I just want to add that this is a safe place for you to talk frankly about how your feeling.  Never feel guilty about venting here.  This is a spot where you can get much needed support.

Momsma, you sure do sound stuck!  I know this sounds drastic, but is there any legal action you can take against your mom's previous care givers for taking her money? 

usamomof2, do you think you could call those family members that dropped by unannounced and say, "I've got XYZ to do next weekend.  I really need for mom to come stay with you those days" or "I really need for you to come sit her with for the day"?  Sometimes folks feel guilty about not helping me and therefore uncomfortable around the one they know is doing all the work.  They won't offer to help because they're afraid it'll something like "Oh you want to help now?  What about when she was in the nursing home and no one would help then?!"  But maybe if you can ask in a nice, but firm way, they may be willing? 


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Hi !

 Thanks for your post Missy!  I do plan to take legal action against my brother & his spend happy wife.  I have been so busy with Moms care that i havn't been able to think straight, but yes they are not going to get away with that.  I spoke with my bro( the nice one:), and told him that it would be nice if Mom could come to his house for the summer. LOL!  He came & took her for the weekend.  Thats after , well we work no ones home .  si i say, well look for some one to sit with her & we will pay the person, well THAT really shook him.  no i  can't because.......on & on.  I said the same thing to my sister & she said haha  i'm with you all summer!  i told her thats ok you can still have the responsibility. The problem is i do ask them nicely,as well as firmly, no luck. 

Does anyone else fel like this?  It may sound rather strange.  I am 57 yrs old, & watching her struggle day to day really scares me.  Mom is 21 yrs older than i am, and sometimes i get downright depressed thinking that the next 20 yrs of my life will be spent as a caretaker, then it may be my turn,  so basically the only good yrs. i have left  are these.  I love Mom, its just so hard.

  On a lighter note, we went grocery shopping & today she drove the scooter!  I was getting nervous

(Mom never drove)  Good Thing she hit the pop machine, as we were pulling in the check out line!

She almost ran me over, She cracking up!  (it was sooo funny)  She was a little embassed, but i'm just glad she didn't have to potty!  THEN we might have been in trouble   Deb 

 


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Hi usamomof2,

How old is your mother in law?   This may seem like strange question but, why is it that you felt compelled to take her out of the nursing home?  I admire your compassion & courage, but when life gets that difficult, it sounds as though you may need to rethink your decision.  Does your husband help you with her care?(  Some men think that caretaking is "womans" work.),  If he doesn't participate , maybe he needs to take a walk in your shoes .  If hes a helper  , then good for you!! Some aids will let you leave while they are there, have you asked what their policy is?  If they cannot let you leave, can you go in your bedroom?  That is what my sister did when Mom lived with her.  She would excuse herself & ask not to be disturbed, unless its absolutely necessary.  This really is tougher than raising my 3 boys, my heart goes out to you & yours, wishing you peace tonight  deb


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Is it too late to vent?? I see the last post was 1 month ago but I just gotta let it all out! Daddy died 2 1/2 yrs ago and Mom stroked out and I found out she was real sick and didnt even know it. She's had 2 strokes-now paralyzed on 1 side and is wheel chair bound, ended up with 5 stints in her heart, 1 to her kidney, has ended up having both carotoid artery surgeries done, diabetic and has hypothyroidism. Whew! She ended up in a nursing home from Aug 06-Oct 06 but c-diff almost did her in. I brought her home from the hospital on Oct 23, 2006 and she's lived with me ever since.

So, I work full time during the day and take care of her all other times. I have 3 brothers and 2 sisters. One sister takes care of her while I work and gets paid from moms social security. The other sister, hardly ever see her. Only 1 of my brothers helps, every couple of months he takes mom to his house for the weekend. I'm pretty much stuck. I love my mother dearly and will not send her back to a nursing home-they are terrible places. All I ask if for regular breaks from my family which I do not get. Mom has me up atleast 1-2 on average every night to use the bathroom. I am so sleep deprived that i've gained weight-from being dependent on caffeine sodas. My fiance left me almost exactly 1 year ago. I've pretty much given up everything and I'm feeling lonely, depressed and resentful.

Pray for me folks. This holiday season seems to be so much harder than last year.


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Vent away at any time, GaGal!  *hugs*  We're here for you.  I'm so sorry you feel pretty stranded by your family.  Think there is any chance, if you ask directly, that they'll help out more?  And if you've already tried that approach, maybe ask them for money to hire someone.  Wonder if that would motivate them to spend a little more time. 


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Great question Missy; I find those who post here know the right wording and are very compassionate.  Caregivers do so out of love and respect, but rarely think of themselves before it's too late.

Well, I'd like to add my two cents, and hope that anyone and everyone who is a caregiver learn from my story.  I was the caregiver for both of my parents, for years.  I finally found a part time caregiver who could take my mother 3 times a week.  I had already moved them both in with me (bought a house large enough), and had told my siblings, all of which never helped and even though some lived far away, they called only once a month to speak to mom and dad, but not me.

Then the worse thing that could happen did; I shattered my elbow and was in need of a caregiver myself.  Ofcourse I notified the rest of the family, and not one person responded........  They did not believe that our parents were that bad.  When the time came when each passed, it was me who notified the family.  It was me at their deathbeds, helping them pass on with love and compassion.  And it was me who was angry by everyone else's lack of concern over what was needed on a daily basis.

I lost both of my parents months apart about a year ago.  Since then the siblings have reconciled with me, and only now do they recognize the health issues, and stress that I have gone through.  Their lives didn't change due to my parents death as mine did.  My parents were a huge part of my life.  So I am dealing with memories that no one else has, but I also got to share time with my parents that everyone else didn't.  I guess it's a good trade.

However, I would suggest if you're dealing with siblings or in laws that won't help, make sure that the person you're caring for has a living trust, and that you have a power or attorney over their health, financials, etc.  This will benefit you as a caregiver, as you'll legally be in control to make decisions and be able to carry out their wishes and ensure that everything is handled correctly.  Plus when people get to a point where they need a caregiver, you'll always have others that did not help begin coming around, since they're sure they will be entitled to any money or other items when the time comes.  People's true colors come out when someone passes, unfortunately.  I love Momsma posting; caregiving is very rough, but if you can see the laughter through the tears, then you know the real reason you're there.

Caregivers are normally very close to those they are caring for.  Ofcourse it is a painful and tiring job.  But speaking from experience, I would not have traded it for the world.  In my care, my mother was always safe and happy.  When I shattered my elbow, she was out of my care for two weeks and broke her hip......   So imagine me, about 3 weeks after surgery, with stitches in my head and my arm in a cast, as my father was too ill to go to the hospital with me.  So been there, done that.

Protect yourself by speaking to the person you're caring for about a living trust, and ensure that they go to an attorney for legal advice.  This way whatever is decided will stand up in court.  And it's not that I'm looking at it as a way to get whatever you can from this person; it's to make sure you have the legal backing to carry out their wishes.  Most people that don't step in to help when you need it and only want money will go about it illegally - so cover yourself, as you have enough to think about.

Ofcourse my family now sees what happened in the past.  They have much more respect for what occurred, as they witnessed some of it firsthand.  It doesn't matter anyway, as the one thing I want most in life is something I can't have, which is my parent's back with me. 

But I now bear mental and physical scars, that even with time will never heal.  Educate yourself on the options you have such as respite care, and when to make what decisions.  Because in the end, most of the time, you're the only voice they have.


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{{{Robin}}}

I couldn't have said it more eloquently ..

I cared for my grandparents and my father-in-law to the end.

My grandma for over 20 years without help from siblings. I also was alone with them when they died and I would do it again if only I could have them back in my life..

Your comments and suggestions obviously come from experience and a place of love in your heart..

You are truly a very special person and you will always have special memories. as I do, because of the closeness and love.

I know that it was hard but also so special.. As I read your post I wanted to reach through the monitor and hug you..

With heartfelt feelings.

 

Cindy


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Robin!

  Thank you!!   Very eloquent, Very accurate , Very Powerful & most of all-Very Loving!!  Blessings!!  Debbie


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Thank you for the responses.  I'm currently working on a book about their journey together (they were married 60 years and passed 3 months apart).  I believe that caregiving is a very under covered issue, and more people need to be aware of the dangers and joys that come with it.  I applaud all those that do it, for the quiet times with the one you love are worth the effort.

Thank you again.   :)


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Robin,

Thats great! You are right caregiving is a topic that isn't talked about nearly enough.. It is hard, can be dangerous and has so many twists and turns that people should be aware of.

The closeness and love that can be shared is the gift that can shine so brightly.

If all that are about to be caregivers had just some of the knowledge that we learn over the years, it could ease their path even if just a little..We learn as we go and there is little doubt that if we knew some of the important things that we should know ahead of time it would surely lessen the stress of the moment again and again..

I once again applaud you for doing what your doing. If writing this book even helps a few, its a gift that will pay forward over and over again...

 

Thanks

 

Cindy


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Well put; I've had people look at me like I'm crazy, but then they have no clue, as they haven't done it as extensively as we have.  I truly commend people like you and hope we can converse, as I'd love to include what I can for those who truly need it.

To Gagal:  I know it's been incredibly hard for you for a while now.  Have you checked into Scan insurance, as they offer respite care (it use to be 4-8 hours every week, at $10.00) which might help.  Also there are A LOT of seniors that could work for minimal pay to help with respite care for you.  They are more reliable and comforting as well.

Hang in there.  I know it's hard, but in order to care for your mom, you need to care for yourself first.  And I KNOW you've heard that one before, but I swear it is true.  I didn't listen until it was too late......


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Sure we can Robin. I have also had people look at me that way, until they need help..Quite a few of my friends are just starting to help their parents now.

I am getting lots of calls from friends and friends of friends wanting to know everything that I can tell them...

Its hard as you know and I am sure the calls will continue as they come across new issues as time goes on..

Maybe we could exchange email addys or something..Not sure if we can get email addys for each other here or not.

Sure is nice to meet you..

 

Cindy


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I would really love to; your gentleness and knowledge shines through clearly.  It is wonderful to meet you as well.  I look forward to conversing for a long, long time.  Thank you again.


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I am in a similar situation being the caretaker. You mention that you've reconciled  with your siblings. I can't get over the way my siblings have treated me or my sick mom. They would like to move forward with me and have a relationship. However,  they will  not discuss the pain they have inflicted.   My mom is still alive  but I can't even stand to see them. So I'd like to know how you could forgive them and have a relationship. I know they weren't there for her so why would they be for me. I  know that I love differently.


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Well, forgiving is a difficult step with lots of layers.  You still have your mother, and for that I am grateful for you.  When I lost my mom, it changed how I felt about everything in my life.  Nothing meant anything to me anymore.  I made if perfectly clear to everyone in my family that anything else I lost, except for my father would not bother me.  And I was ready to write them off as well.  When my mother passed, it's as if the bonds were broken, and as a family, we needed to recreate a family unit and either come together or go our separate ways.  I guess I earned their respect when they saw how it changed me.

It's a very difficult space you're in right now.  You're her protector and her voice and you see the injustice in it all.  She is still alive and you're in the middle of it.  You stated that they will not discuss the pain they have inflicted.  It sounds as if you have more than just a caregiving issue going on.

I cannot suggest to you what you should do, but I can suggest that you can be honest here, as there is a wealth of information and compassion that can be passed on to you, which you so desperately need.  As a caregiver for a person you so obviously love, you take on the job as protector as well, and most often do what needs to be done, whatever the cost.  Some people just aren't "built" that way; they think about themselves first - forgetting the rest. 

Speaking from experience, it takes each person to see the other as a soul that feels pain.  It also takes each one to respect the other for what they've brought to the table.  Once your parents are gone, the fabric of your whole history takes on a new meaning.  Maybe in the past, you can find the answers that you're looking for. 

Again, you're safe here.  More info would help so we could understand your issue and why your siblings are acting this way.  Believe me, it was no picnic for me at any time.  But I guess we love each other enough to give a d****.  I'll be looking for your response; take care.


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Hi Everyone!  I'm new here too and am so thankful to find you all!  My response is a resounding NO!  I care for my dad who is 94.  He has memory loss and cannot be left alone.  My 3 siblings don't help.  I am 49 and have lived back at the home I grew up in for 13 years.  My sister used to help but only if I guilted her into it.  I have an older brother who lives out of state with his wife and 3 kids.  I have another older brother who lives in town with his wife and two kids.  My sister is in town, divorced and caring for 1 of her two kids, the other one is in college. 

When I first moved in my dad was very mobile and could still drive and do many things.  He led an active life.  Slowly but surely, I saw that I needed to help him with banking, insurance and all paperwork details.  He had an accident driving and knew that he had to stop driving.  Then he broke a hip, which slowed him down just a bit.  A couple of years after that he broke the other hip. That was 2 years ago and he has recovered well, but needs part time care giving so I can go to work.  I found an angel care giver who stays with him for the 9 hours I'm gone Monday-Saturday. 

Without going into the gorry details of my experience, over the last 2 years my family has imploded.  This implostion stems because of the contents of my fathers Will and Trust.  I'm sure this story is not new to many of you.  My father made changes over the years and bottom line, gave me more of his estate than my siblings.  When this was discovered by my siblings, they turned on me quicker than you can imagine.  I have been accused of coercing my father into giving me more than them, I've been accused of "planning" my takeover from the day I moved in.  There is so much more to this story but I'm sure it's the same story you've all heard, but with different players.

Today, my relationship with my 2 of my siblings is still fractured, and one brother and his family have ex-communicated me from their lives.  I have struggled for 2 years with this situation but have come out stronger and more clear about who I am and the choices I've made in my life.  It was a crushing blow to lose my family in one week's time, but it's made me stronger and made me extremely grateful for my friends and all of the people that helped me through this very dark period.

My father enjoys his life tremdously and seems to be getting younger not older. He has a personal trainer who comes to the house and works out with him twice a week and he excersises daily with his care giver.  He goes out to lunch with friends and we even took a vacation to the beach this past summer.  He wants singing lessons and wants to ride on a motorcycle!  He's living the best life I can give him and he's NOT in a home.  At any time I could have thrown in the towel and walked away.  But I made a commitment 13 years ago that I would stay until the end and that is what I will do.  I will do my best to give my dad the quality of life he deserves.

What happened with my siblings stems from years of unspoken angers and resentments, which were able to be unleashed when the money entered the picture.  And I might add that we're not talking millions of dollars.  Not by a long shot.  I

I've come a long way since this happened and I've accepted the things I cannot change.  I have tried numerous times to talk to them about the situation and only one brother has stepped up to th plate and hashed through some of the old resentment.   I don't ask for their help.  I don't share my life with them.  The VERY sad thing is that they have taken out their displeasure with me on my dad and have strong issues with him for changing the Will, for betraying my mother (by changing the will), and for being weak enough to be pushed around by me.  Very, very sad state of affairs.  They lose out on the last years of their fathers life and he loses out knowing his kids.  He understands what is happening a bit and sometimes cries because my brother never comes over.  This breaks my heart.  I have never told him why they are not coming around because he cries whenever their is family agitation.  He's done that for years.  So I have taken this beating alone and have had no one in my family to turn to.  My family is the amazing friends and friendships I have cultivated over the last 40 years.  They truly are a gift from God, my friends.

Anyway, there is my story in a very small and hopefully clear nutshell.  Thank you all for being here.  I have a caregiver support group I go to twice a month and it surely does help.

See you back here soon!!

Love and peace,

Lily

 

 

 

 

 

 

 

 

 

 


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Lily; very well said, and I should add that through your care and love, he is thriving, so to you I say "way to go woman!"  You've obviously tried to do whatever is best for your father, and as a caregiver, it must feel awesome to see what you've accomplished.  Unfortunately, family ties also entail long seeded jealousy and shame for what has happened.

If your father is well enough, I would share with him why the rest of the family is doing this to you.  I know there are other factors in your story as to the family stuff, but it's his will, so he should know all the details.  The fact remains that you put your life in a state of suspension, so that he would receive the type of care he deserves.  That says volumes.  Sometimes family members can't come help because of distance, but that doesn't mean the phone doesn't work, or they can't write a check every now and then.  And hey, what about a visit every couple of months?  Regardless of what the past has held, your parents DESERVE respect and compassion, for without their pairing, you wouldn't be here, right?  But I'm preaching to the chorus.....

I would bring it up to your father.

On a sidenote:  I did the bulk of the work and hardships for both of my parents, but we all got the same amount.  I'm not bitter; oh wait - yes I am, because my parents are no longer here.  But you get what I mean.

Thanks for sharing; great comment.


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Hi RobinD!

Thank you so much for the warm welcome. It feels so good to dump this stuff to people who really understand.  I'll think about talking to my dad. My concern is that he persevorates over these matters and I don't want to upset him.  I'm not even that sure he'd really understand what I was talking about.  But, I will keep it in consideration.

That is very sweet what you said about your folks.  I wish my mom was here too.

The kicker of the whole thing is that I didn't ask for any of what left to me, with the exception of getting my $65 grand back at the sale of the house which gets split 4 ways.  The remodel I did added significant square footage and has added to the value of the house so they shouldn't care that I would get my money back.  But in their eyes I've lived here rent free so why should they pay?

Thank you so much all of you.  Hope to be around here for a long time.  Thank you all for all you do for your Care person.

 

 

 

 


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You never really know a family member until money is involved; then it's like they grow another head and start snarling at you.  I'm sorry you're going through this, and in the end you'll be left with memories to deal with long after your father is gone.  It sucks, but you'll have the fun memories, and seeing your father through the twilight of his life.  You can't ask for more than that and the rest of your family will miss out.  So who's worse for the wear?

Hang in there.  Enjoy each day and take the time to laugh at the small stuff; it's what gets you through.  Take care and look forward to more posts to see how you're doing.


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