Thanks Earl, but the nursing home only walks 3 times a week, prefers drugs to keep them quiet but it usually aggitates them.
on a puree diet now because they lost her teeth
Easier to diaper her than put her on the toliet.
I'll try and stay positive, but why is it so hard to get quality care just drugs.
**********************double check the care*******Iam looking for work now**********
hello i hope het better for you,please be sure to double check on his care, pop in without calling.i am personal caretaker looking for position i worked for lawyer in mckees rocks pa he past away at 98,Iam male with long historty of careing for people loved onces., the thing about i care for people like they are my parents,i have clean crimnail records
*****************call me direct lets talk****iam not looking to work for any state agency or program,cash***********************724-968-3301 Earl J ....
I feel for you - nursing home care is not always the best alternative sometimes its the only care - but I could suggest you try looking into other facilities - even when on medicaid they still have rights to proper care - and being transfered to another facility is a possibility- the reason I think good ability to find the correct meds may be the doctor's inability or hesitancy to experiment - finding a doctor that is willing to trial can be done if you have the ability - again I don't know your situation - some of my moms doctors in my opinion could of been more involved - like the geriatric doctor that was caring for her the last four years - the day she was diagnosed terminal he didn't even come to the hospital to see her - he sent a covering doctor and never saw here again - my mom had been diagnosed with parkinson's and had a few strokes though it took her awhile to recover most - she saw all the doctors was prescribed meds and ended up dying from a massive tumor in her brain and spine two years later- and I can't help but think that alot of her symptoms were overlook due to general diagnosing for most eightytwo year olds I do suggest you keep reading online- try different sites-ask ask ask again for more help - there are people who can network and services and I did learn alot in that very short time - I wish you well and god blessed - angie
My husband was diagnosed at the age of 49. Just remember don't have your dad eat protien 1 hour before the medication or 2 hours after taking medication. Protein does something and lessens the benefits.
My dad has had parkinsons for 12 years he is in te third stage and up until this year he has managed it wonderfully witha great doctor and the medacations adjusted right.He is 80 years old and is having swallowing problems and balance problems.But he had a great life with it for 12 years.Get a good doctor and you and you have a long way to go.
This sounds so similar to my 88 year old father. He is still swallowing ok but he too reverts back to his youth and often says things as if he thinks we are living in the past. He is in a nursing home because he is beyond homecare and always sleeps in his wheelchair.
Hi Sorry about your dad. Glad the medicine is working. My brother inlaw has parkinsons and also has Kaizer. He is in California. They gave him a neuro that he didn't like very well and requested one that was outside the plan and they said okay. It has not been a problem. Good luck to you.
I was diagnosed with PD 10 years ago. The best source of material on understanding the disease is the book written by J. Eric Ahlshog, MD, Mayo Clinic Parkinson Specialist. The title is The Parkindon's Disease Treatment Book
I ran across your story and it is very similar to my own. My mother was diagnosed with Parkinsons last year. We just noticed a slight limp and mild tremors and that was the diagnosis. I, as well as my family are devastated. She was immediately given the same meds as your dad. I have been doing research and that makes me feel informed which helps to encourage. I can tell you that this is a tough disease to deal with. We have begun to "babyproof" the house. My mom is also considering joining a clinical trial but hasen't decided yet. She got a stationary bike and goes to physical therapy. These things help. I will keep you and your dad in my prayers.
Hello. This is the first time I have ever responded to any type of posting on any internet site. I have always gained support and advice from reading posts from you wonderful individuals, but I've always had a fear of writing my thoughts, like it's securing fate. Ha. Sorry if this is gibberish, like the ramblings of a preteen girl's diary, but here goes.
My wonderful dad was recently diagnosed with Parkinson's, then unrelated Dementia a month later. He's my favorite guy, one I've worked really hard to build a relationship with after years of anger I carried for him. He's always been the first to demonstrate love and compassion for others; he emulates empathy. But from the age of 12 to the age of 22 (god bless college as a time to reevaluate) I couldn't look him in the eyes or hug him after a very difficult period in our lives. Yet I loved him, and grieved over the loss of our relationship. Thankfully, forgiveness graced us (for each other) and I became determined to rebuild the close bond our family had always shared. I also knew it was a matter of time (my dad was 53 when I was born) and that he wouldn't be around forever. Now or never, right?
Well life's great, for the most part. I have another wonderful man in my life, I look forward to having kids someday sooner than later, but not tomorrow, and I want them to know my funny, witty, brilliant, slightly egotistical, loving, music-snob father. I want more time. I'm selfish, and I hate that every day I see more of him disappear. For years we thought it was the side-effects of his excessive anti-depressant prescriptions, which I think made us silently resent him, blame him for his lethargy, and try to overly motivate him to become more active, as though that would jump his mental state back to "normal". We thought the shaking, the loss of interest in discussing politics or the meaning of life, the shuffling of feet, the constant sleeping, the slightly vacant look were just side-effects (again, which I resented but resigned myself to) and aging (he turned 80 this year). And so did his doctors. Lo and behold, he's no longer on any of his 4 anti-depressants, and he's not depressed! Well that's a blessing, but lord knows how long he's been misdiagnosed. I'm just all sorts of upset and angry, and I can't actually blame anyone except life. I know this, yet when friends, or even family, comment how I'm "lucky" to have had my dad active in my life for "so many years", and that "it's natural" given his age, it feels like they're stealing my right to be sad, to grieve that he will never be "Dad" in some ways again, that my kids won't experience his thirst for life. It's like they just want me to cheer up, accept fate, and move on, and all I can think of is "Be grateful?" For what? And why? I was grateful before. I still appreciate him and will continue to, but that doesn't mean I have to be happy about this. False cheer won't bring him any closer to the man I knew. Let me be grateful AND grieve. Dad's disappering; don't make me blind to it, and let me call it what it is, a loss.
Sorry about the length. But it's my first time, eh?
SkinnyDugan: I love your writing. It is rich, authentic and courageous. I can "hear" your pain, joy and love. When people try to cheer you up it's because they don't know how to respond. It's natural for friends to want you to be happy. They think they are helping by having you look on "the good side".
I used to do this until my my Mom got Parkinson's. I've now learned to just listen to friends' worries, fears, etc., and "be" with them in the converstaion. If these are close friends, you could say to them that you appreciate their efforts to cheer you up but what you really need (or would be helpful) is for them to just listen, hold your hand, and give you a shoulder to cry on. You will find out which friends you can rely on for this type of support.
You might also find that a Parkinsosn's support group would be helpful.
I know what you are going through and it's OK to grieve. It's part of being "human".
Sending hugs!
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