'Does anyone have a parent with C O P D?' posted by baby girl @ {post.created_at.to_s(:post_time)}

baby girl — Fri, 03 Feb 2012 18:06:54 -0000

It sounds like you need a break away if even just for a few minutes or a couple of short hours, dont know how dependant mom is on you or if there is some one else there to relieve you but if you dont get away you will just build it all up inside til you explode, and that wont help anything. It is normal to feel the way you are, the heplessness you fill is really hard, I felt the same with my Moma. Watching her suffer knowing there was nothing more I could do to help her through. She was a very strong woman and the last thing she would have wanted is to cause me suffering, but it is out of thier control... life is so unfair sometimes. All I can think is try to find some time to yourself away,and it will maybe help relieve some of the anger and frustration that builds up.. I can tell you that I would give anything to hear my Momas cracklin cough again right now, as she has been gone since May 5-2011 and I miss her so much... there is good advice through out these posts of how some handle the stress and also sucking on hard candies helped sooth Momas throat and suppress her coughing some , but the nurses told me they have to keep coughing to get all that flem out so they can breath... Bless you and your Mom lagogo, I am sending peace and possative energies to you. Best of luck and hugs to you. Birdbits

'Does anyone have a parent with C O P D?' posted by GregMiller @ {post.created_at.to_s(:post_time)}

GregMiller — Thu, 02 Feb 2012 21:23:28 -0000

I noticed that when my mother would cough I could hear the mucus rustling around in her lungs but she was not able to cough any of it up and out of her lungs.

I found NAC (N-acetyl-L-cysteine) which liquefies the mucus. Mucus is apparently high in sulfur and thed sulfur atoms form di-sulfide bonds with each other clumping small pieces of mucus into large masses. The NAC (500-600 mg) breaks the di-sulfide bonds.

It took about 45 minutes after giving her the NAC before she would have a "productive" cough and actually spit out mucus for about the next 45 minutes. After that she would always sleep very soundly.

It seemed very strange that no one could explain why emphysema and COPD get worse long after smoking cessation. My mother's doctor told me it was a mystery.

It seems to me that some pathogen is introduced into the lungs by smoking. This unknown pathogen continues proliferating whether the patient quits smoking or not.

Dr. Kenneth Hunter, a cancer researcher, stated that cancer cells have more than 90 receptor sites for sugar. He takes all sugar and simple carbs out of the patients' diets.

I started my mother on a similar diet and in about two weeks she was showing improvement although subtle they were the first improvements she had shown since her diagnosis.

The diet can be found by searching for Dr. Hunter and reading his research, by reading the book, "The Allergy and Asthma Cure" by Dr. Fred Pescatore, M.D., who uses the same basic diet or by visiting the following web page:

http://www.emphysema-treatments.com/diet.htm

'Does anyone have a parent with C O P D?' posted by lagogo @ {post.created_at.to_s(:post_time)}

lagogo — Thu, 02 Feb 2012 12:31:28 -0000

Hi everyone

I feel like I am going out of my mind and need someone to identify with. My mother has had COPD for many years now, and at the moment it is worse than it has ever been. I feel so bad because there is nothing I can actually do to help her but the coughing sometimes just really gets me down. She had had a bad cough since I was born but now it sounds like nothing i have ever heard. I am living with her and I feel like its tipping me over the edge, worse still I have to feel the guilt over feeling so frustrated with it as I know it isn't her fault. It is almost as if it is a loud reminder of the pain she is suffereing that I can do nothing about. It grates me. I just want to run away from it all. I feel liike such a horrible person but I really don't think I can take much more without having some sort of breakdown. Does anyone feel the same?

'Does anyone have a parent with C O P D?' posted by baby girl @ {post.created_at.to_s(:post_time)}

baby girl — Mon, 16 Jan 2012 12:36:38 -0000

And by the way, I have coppied your words so I can keep them close and will come back to read often, evrything you wrote is true and you have a wonderful way of saying it! Thank you again my lil Angel!

'Does anyone have a parent with C O P D?' posted by baby girl @ {post.created_at.to_s(:post_time)}

baby girl — Sun, 15 Jan 2012 02:05:20 -0000

Aww, Thank you so much Terrie, You have such a wonderful outlook ,you have a beautiful soul, and your words are powerful and true I know, My Sweet Moma is and always will be with me. You words of wisdom have uplifted me and I am sure will help others that read this too. You truly must be an Angel sent down here from Heaven because you have given me new Hope and Faith and a whole new outlook. I have handed it all over to God and feel that with him guiding me, I can get through anything!! I can not tell you how Thankful and Blessed I feel for your comfort and inspiration.God Does love us and he is with us always! Blessings of Gods Love, Comfort, and Strenght be with you my kind hearted friend. Big Hugs, Teresa (Baby Girl)

'Does anyone have a parent with C O P D?' posted by tmybaby44 @ {post.created_at.to_s(:post_time)}

tmybaby44 — Fri, 13 Jan 2012 05:18:20 -0000

Baby Girl, Go get a good happy Picture of you and your Mom or just a picture of your Mom. Look at that picture take yourself back to that day or just simply make something up but make it like pure paradise that your Mom and you are at and or all of you out there your Mom and dad's. Have fun with this day dream go there be in that paradise with them see them as the beautiful people that they truely are, I say are because they are still here just not in body in spirit. The Spirit of Jesus, God, Holy Spirit and or Holy Ghost is so awesome, It can take you places you have never dreamed of going to before. Well thats where they are and in your dreams and day dreams you can be there too! You don't ever have to let go of the people we love who have passed on to a better place, don't ever let go but do let them Rest in Peace, and to do this you can day dream and dream. God does love you still when you dream, joke, laugh and cry, he Hears us and knows why and what we are going to do before we do it. When some one has loss there memory always remember they can still hear. Part of the brain is still where they so want to be but they can not express it. I like useing loss of memory sounds so much better and feels better to . Pray with them even if you think they don't know because guess what they do. Why do I say that. Well because God protects his children and he so protects the ones whom have lost there memory with what ever else goes along with it. If you look at things like this with a positive attitude things in life will seem so much different almost like a live angel your taking care of because that is what your doing. Your prepaing this person for enternal life what an awesome thing to do for someone don't you think? I sure do. Gods love through another person or maybe alone is so awesome. Always think of the good times and let go of the bad and most of all forgive them for smoking and dieing because guess what? It was Gods plan they be taken it was there time to go and be with him and prepare for the new and old to come in the new world to come. Jesus loves all and he loves you. The COPD isn't that bad if you have God at your side and are lucky enough to have Daughter's like you both and son's etc. Loved ones at your side or even prayer. Your never alone if you have Jesus at your side and Jesus driving for you and Taking the WHEEL at all times. May God bless you always in Jesus name and know that your loved. Always in Gods loves and ways, Terrie

'Does anyone have a parent with C O P D?' posted by baby girl @ {post.created_at.to_s(:post_time)}

baby girl — Fri, 13 Jan 2012 00:57:59 -0000

Oh I am so thankful for the encouraging words of kindness and comfort! I cried while reading your posts... tmybaby44, I'm sorry for you having this horrible stuff too, you share very good advise and information, sounds like you have armed yourself with lots of knowledge about this stuff, is good because the more we know,the more we can help ourselves and others..I feel PULMONARY DRs and FAITH IN GOD are the two key components to battling through this horrible COPD too, we can not cure it , so we must learn to cope with it and try to stay possative. I know you are right about keeping stress out, definately can't breath with the anxiety attacks, which was alot of my moms problem as well, there is so much I didn't know in the begining when mom first got sick. She was refered to so many diff kinds of dr.s but the only one she really needed in the end was the PULMONARY.I was so lucky to be able to be with her through it al even though she became a different person as the alzhiemers progressed and right now I only seem to be able to remember her in her suffering and weakened state , I hope in time I will be able to recall more of the healthy and happy mom that was always there for me.You are a very caring person I can tell, I believe too that you were sent to this site right when I needed you and I thank God for the Blessing of you and for all the encouragement I have found here.Your possative words have really lifted my spirits.

I am sorry for you too Marley26, losing your mom and dad so close together had to be very difficult, your mom was very fortunate to have you there with her, I agree it is only natural that children should be there for their parents when they need them, they were there for us and if not for them there would be no us... I know that peaceful look you spoke of.. my mom looked so peaceful when her time came, she was ready to go into Gods loving arms, and she would never want me to be like this, regretting and so sad and crying, she told me early on that she looked forward to leaving this crazy world we live in these days and to see the Lord and all of her lost family and friends there. That is what I have to remind myself that she is in a much better place with no more pain... And I have felt that cold draft all around me and I will think of it just that way now, to be my mom wrapping her love around me to say she is ok and in a better happier place, that gives me something to hold on to, I thank you more than words can say for that and all your kind and encouraging words. I know you are right and the way you put it gives me such comfort. I do talk to both of my sisters but they live hundreds of miles away from me and each other and they don't talk to each other, due to a childhood grudge that they never out grew, and both must be suffering through the loss of our mom badly but don't want to admit it and they dont seem to want to talk about it. I don't hold anything against them, and have forgiven them as I know my mom would have and would want me to, so I try not to say too much but I have things I feel should be shared and remembered, good things...I hope that maybe some day they will want to know more about it...but until then I guess we just wont talk about it ,which is sad cause they are all that is left of our entire family.. and we are all we have, aside from my hubby and son, I have no more family...well now I have 2 young grandchildren living with me which gives me more reason to fight this stuff and hang in here as long as God will grant me. I am thankful for every moment here on earth I have been givin with my family and loved ones. That is what we all must try to do cherish each day God has givin us and have faith that he is with us always , walking us through this journey of life, bringing us ever closer to him and his glorious kingdom... Thank you both again, Gods Blessings, Hugs, and Possative Energies coming to you

Baby Girl (Teresa)

'Does anyone have a parent with C O P D?' posted by tmybaby44 @ {post.created_at.to_s(:post_time)}

tmybaby44 — Mon, 09 Jan 2012 22:05:01 -0000

This COPD really stinks I know. But somehow we, I have come to peace with it as your Mother did. I reuse to take all the steroids etc. because thats when you fall. 2 months ago I wouldn't have given a nickel for my life, the Doctor wanted to put me in hospital I said NO because I knew if I went I wasn't ever coming home let alone alive. COPD there is NO CURE for it but there is a POWER in the person whom wants to live to go on. God has plans for all of us and we all have to die from something. COPD yes can be very painful, but I take myself to a place of peace in prayer and somehow God grants me another day of Peace. Know that your Mom is at peace and in NO pain. She wouldn't want you to sit and suffer about her passing she would want you to celebrate her renewal into life without pain, anger and suffering. I know she is at peace why because I can feel it and I was sent to this web page for a reason, I was looking up something totally off the wall and this came up. So trust me God sent me here to let you know she is okay! Just because you can't see someone doesn't mean the love isn't still there. Rem- that God is awesome, somedays I don't like listening but I do. I pray for peace for all on earth and those whom are sick and those whom have this rotton COPD or any other disease's . I see all the people in here and see its 3 years ago, see God did send me I truely believe this. Your Mom loves you and wants you to be happy and ive your life not be sad she is gone be happy for her that she is at peace. God Bless you Marly26 and all the rest. Wish I could say more but i'm a suffer of COPD and a FIGHTER. my blessings to you all, Terrie

'Does anyone have a parent with C O P D?' posted by Marly26 @ {post.created_at.to_s(:post_time)}

Marly26 — Mon, 09 Jan 2012 21:33:19 -0000

I can certainly understand where you are coming from. My wonderful mom (my best friend) had COPD. I spent many hours with her even when she wasn't as bad with it when I lived close to her. My sister was close to her more at that time, however as soon as I got a phone call prior to moving I was there in a heartbeat. We always have best friends however in the end who was really the best friend you ever had, your (mom) and my dad who has passed also. If I wasn't where she was living we talked on the phone sometimes' 4-5 times a day, it didn't matter that it was long distance. I lost my dad in 1999 and my mom in 2004 and there are still times that the tears just come naturally. Its always something small but related. When I got the call from my sister to get up there as I said I was there in a heartbeat. She was still cheery but I knew the signs well being a Healthcare Provider. She had company when I arrived and as they left her one sister said I will see you tomorrow, my mother said "I wont' be here. She asked for me to call the ambulance around 8:30pm. and of course I was there. They gave her some morphene to help the pain in her breathing. When I left she looked so peaceful. For some reason I knew that I would get a call around 1am. The phone rang at 1:20 I rushed myself to the hospital, they said they would approximate 30min. I got there in 20. The nurse met me at the door and took me into the Family Room. I knew the nurse well both as a friend and acquaintance. She told me she was gone. I went in to see her. She lay there so peacefully, to be honest I had never seen her look so peaceful. It was a relief seeing the way she looked even though the tears were flowing. She had only requested that immediate family see her prior to going to the Crematorium. They all came in and said their final good-byes. She didn't want a funeral service just a memorial. As we respect our parents' we have to respect their wishes' which we did. We had her Memorial in May of that year. For those who negate to visit their parent(s) I feel is ignorance. Parent(s) looked after us for so many years so why should we not be there for them. Karma has a way of coming back to those and it will happen, your sisters wont' know what hit them I'm sorry to say. My heart is with you in all that you went through on your own, and it takes some time to get over the grieving end of it, some of us just dont'. At least you know you did the right thing out of love, care and devotion. There is no point in saying anything to your sisters' it will only make you hurt more yourself. Let your tears' flow when need be, never be ashamed to. You know just as I do that you did everything in your power to help your mom and she knew you loved and cared for her. Thats' what matters'. Ignorance is Bliss! I dont' know if you are talking with your sisters' at this time of writing however when/if you do I wouldn't say a thing to them. If they ask leave well enough alone, the only thing to say is if you were there you would know. End of conversation, if they pursue and you get upset simply ask them to leave. May "God" be with you, your mom is at rest and in peace now. Someone is watching over you. May sound silly but if you ever feel a cold draft around you, its your moms' spirit letting you know she loves you and she is okay. If you ever feel a need to talk pls. dont' hesitate to email me, I believe my email is on the site. Talking it out really helps and takes the stress away!! Big Hugs to you!

'Does anyone have a parent with C O P D?' posted by tmybaby44 @ {post.created_at.to_s(:post_time)}

tmybaby44 — Mon, 09 Jan 2012 20:03:23 -0000

There is tons of stuff on COPD. I'm the child with COPD and MY Dads had COPD as well ya think I would have learnt from them. I quit smoking and yes the COPD got worse because all the stuff from all the years of smoking has to come up. First and for most all COPD people need to see PULMANARY doctors only. not a reg. MD. Second of all they have to have FAITH IN GOD, If you trust in God you can get through all things. When I was told I had it I knew the words didnt sound to good but didnt want to know. My Doc said are you ready to give up cigs, I said not really and that was that. then I looked up what it was took me a week to do it and read on it I almost dropped over dead from reading about it. QUIT SMOKING is all I can say, stay under docs care and give it to God. A Lot of Mucas etc. and if you get upset and panic then you can NOT BREATH, so the person with COPD CAN NOT have any STRESS, PLUS exercise slowly if not use to it, stay away from stuff that will cause mucas in throat and nose and lungs. You can do it, COPD is a death sentence but we all have one were born to die. We just know what were going to die from but then again we could be hit by a car so DON't worry about TOMORROW worry about TODAY. stay blessed. just type in browser COPD and you will see many results. God bless you all, Try to let the COPD person walk across the room every day etc. NO exercises over head. Shake there legs, twist there waist simple stuff u can do sitting down, slowly u will be able to walk around. Drink water eat greens if your not on blood thinners. When you wake up shake your body a little bit each day. WE NEED EXERCISE not PAMPER us to death strong firm help that way, You can tell. I use 3 inhalors, and am on a machine not oxegen I have tried to stay away from that 9 out of 10 of us have Asthma as well, WE have severe LUNG Disease which was caused by second hand smoke, our own, factorys, pollution etc. So like I said walk across the room, the more you move the better off you are. God bless you with much of Gods Love and Blessings. P.S. if the person simply can not exercise do it for them. LOVE AND GOD can do all things.

'Does anyone have a parent with C O P D?' posted by baby girl @ {post.created_at.to_s(:post_time)}

baby girl — Tue, 03 Jan 2012 04:44:47 -0000

Cindy, Its understandable you feel awefull, I am so sorry you having to go through all this and I hope the dr has something good to say tomarrow. Yes, a good cry does do the body good sometimes ... but too much is not good.. I am praying that God will find a way to bring you back together with your children , even if only for short words,phone calls...anything is better than nothing... and if they dont call you, maybe you could call them, you have every right to wonder how your son is doing too and surely they must know how much better you would feel just to talk to them... no matter what has happened between yall...or how busy thier lifestyles have become. I consider it a blessing having met you here and enjoy talking to you and truley do care so I will look forward to hearing how it goes at the dr... try to get some rest, sounds like you will need it...;-) Hugs and Prayers, Teresa (Baby Girl)

'Does anyone have a parent with C O P D?' posted by sulla458 @ {post.created_at.to_s(:post_time)}

sulla458 — Mon, 02 Jan 2012 19:46:26 -0000

Baby girl

thank you for your prayers,wished I could say Im doing great and feeling better,truth is I feel awlful.,and I know me getting uopset dosnt help.yesterday.I cried most of the day.just thinking about my children. but every now and then Its good to just have a good cry.I know God is with me every day.and thats what keeps me going.Im so thankful for the prayers.will let you know what the Dr,says after I see him tomorrow .God Bless you are in my prayers cindy(sulla458)

'Does anyone have a parent with C O P D?' posted by sulla458 @ {post.created_at.to_s(:post_time)}

sulla458 — Mon, 02 Jan 2012 19:37:35 -0000

I suffer from several health problems,celiac/gerd/back problems/panic/ptsd/and my bones are thin.broke my foot in june,wouldnt heal,so they did surgery end of sept.put a plate with screws in .it sticks out due to me being so thin.hurts all yhr time,and found out I have been haveing tias,thats whu I have been dizzy and so weak.I am seeing the Lung Dr,tomorrow,and not looking forward to it.haveing such a time breathing.dont want to be back in the hospital.

'Does anyone have a parent with C O P D?' posted by sulla458 @ {post.created_at.to_s(:post_time)}

sulla458 — Mon, 02 Jan 2012 19:31:42 -0000

the Doctors have tried to wean me off yhe steriods ,but are not able to as I went in to repratory failure and because steriods take over for your adrenal glands ,mine wouldnt work.so its a no win sitution when it comes to steriods sulla458

'Does anyone have a parent with C O P D?' posted by GregMiller @ {post.created_at.to_s(:post_time)}

GregMiller — Mon, 02 Jan 2012 02:30:04 -0000

My mother had deteriorated down to only 77 pounds and was on 4 liters of supplemental oxygen. I found a diet used in cancer research at the University of Nevada School of Medicine and used by Dr. Pescatore, M.D., a New York City physician.

My mother started doing better after two weeks and after 3 months only needed 3 liters of supplemental oxygen and had gained 6 pounds.

The diet is also on my web site which is on my profile.

'Does anyone have a parent with C O P D?' posted by GregMiller @ {post.created_at.to_s(:post_time)}

GregMiller — Sun, 01 Jan 2012 23:47:14 -0000

Something you might try that will reduce inflammation and actually got my mom off of prednisone was 6000-8000 IUs of omega-3 fatty acids and proteolytic enzymes on an empty stomach. These both reduce inflammation and after about a month on both of them my mother never needed prednisone again.

It seemed like her emphysema and COPD accelerated with repeated use of prednisone and antibiotics. I incorporated many other supplements and a very specific diet but after 17 months my mother recovered from emphysema and COPD after her doctor telling me that it was impossible.

I eventually realized that smoking introduced a pathogen into the lungs that continues proliferating even if the patient stops smoking. I watched my mother continue deteriorating long after she quit smoking.

Dr. Hunter at the University of Nevada School of Medicine uses a diet that starves cancer, a pathogen. I tried it for my mother and she was showing noticeable improvements in only two weeks. Her pulmonary specialist was in shock the next time he saw her.

Once I realized the drugs were doing nothing but masking symptoms I started looking for something non-pharmaceutical. There is not enough room to list the entire diet or all the supplements but they are on my web site.

'Does anyone have a parent with C O P D?' posted by baby girl @ {post.created_at.to_s(:post_time)}

baby girl — Sun, 01 Jan 2012 22:54:13 -0000

Sorry you not feeling too good Cindy, hope you feel better today...We seem to have alot in common, my skin is the same way due to prednisone and I have back and neck injuries, yes that is a blessing that your dr got you ssi, I don't know much about it but sure it helps. I am very sorry to hear about your son, I can only imagine how hard that would be, but it is good that he has a place to live, still it has to be so hard for you especially cause he is your baby, the youngest is alwyas the hardest to see move out anyway and with the other circumstances,plus not being able to talk to him, or any of your children... but sometimes our plates get too full and sometimes there are things we have no control over and we have to do the only thing we can, that is what you have done and it took alot of courage.I admire your strength. wish there was a way you could just talk with your children because I think it could really help you ... God must know you are a very strong woman to lay such heavy burdens on you and I know that he will be there to help carry you through. I am praying for strength, peace, and comfort for you , now and throu out this new year... Happy New Years to you too, hope its a better one... :-) Blessings and Big Warm Hugs, Teresa ( Baby Girl)

'Does anyone have a parent with C O P D?' posted by sulla458 @ {post.created_at.to_s(:post_time)}

sulla458 — Sun, 01 Jan 2012 02:17:04 -0000

Thank you teresa.for your kindness.I have been single for over 17 yrs.its a long story but I will say I am a survior.My son is my youngest he is 21 now.he lives with my youngest daughter and her husband and children,at least they took him in and promised he would always live with them.its a big relief ,still it breaks my heart .not hearing how things are going.how hes doing,he has ausburger syndrome(high functioning autistic)plus social phobia,ADHD.he was born that way.I was able to care for him for 19 and 1/2 yrs.but being in and out of the hospital so much.it just got to the point.I couldnt take care of him.and he didnt like being alone.so my daughter took him in .it took a while for him to adjust.but like I said they dont call or visit.I understand they (my daughters) have there own families and life.and growing up with a parent who was sick so much,they really dont want to be around.sure it hurts and it tears my heart out.but I dont blame them,I love them so very much,and pray for them daily.I am thankful they dont have the illness I have.you wiegh abot the same as me.my wieght goes from 92lbs to 80 lbs.I have a bad back as well.I asume from long term steriods.my skin is like tissue paper,barely bump it and I have awlfuf bruises.or my skin rips.I am thankful that my lung Dr,sent papers in for me yrs ago for ssi.or I wouldnt have anything to live on.thank you so much for letting me talk or type.Im going to bed not doing so well and am very tired.God Bless you Have a wonderful New year may it bring a much better year .Blessings and hugs cindy(sulla458)

'Does anyone have a parent with C O P D?' posted by baby girl @ {post.created_at.to_s(:post_time)}

baby girl — Sat, 31 Dec 2011 22:10:36 -0000

I know what you mean about being on so many meds, I am on about all the same as you , its hard to keep up with them all and I have lost so much weight because of it too, I am 95 pounds, alot better than the 82 pounds I dropped down to while taking care of mom, but still could use a little meat on my bones to cushion these achy bones and keep warm :-) Ouwch! your foot sounds very painful, I know that had to hurt and still does... I have arthritis (rheumatoid and osteoarthritis) in 80% of my body so I know the bones can be so painful... But it sounds like you made the most of, that sounds like something I would do, houseworking on a chair, ha ha where there is a will there is a way eh? Also I know about not being eligible for medicare, because I did alot of work for cash too when younger and now have nothing to show for it, I have also been denied disability, not because I am not disabled, but because I didn't work at least 1 year previous... a new law they just made a couple of years ago I am told... and I think that our government needs much better medical and health care plans for all the taxes we (our hubbys) have paid to them for years... The cost of our medicines that we must have is ridiculous, let alone the dr.s and hospitals... I am hoping they, (the government), will come up with some better solutions to help us all out .... The hardest part of all for me with my mom was not having her to talk about all she and I were going through because of her Alzheimer, she was my best friend and I told her everything... until that time when we actually needed each other most...I am very blessed to have a good hubby who has been with me for over 30 years and loves me and was there for me and my mom... It helps to have some one just to talk to that understands , that is going through the same, this is a good place for that, I think just about everyone that has posted here on this post either has it or has been affected by COPD through a loved one so you can vent out or maybe even find a few answers here... You take good care of yourself and stay positive! Thanks for the prayers , I need all I can get too... Blessings and hugs to you Cindy, I like that name, is my older sisters name too :-)

'Does anyone have a parent with C O P D?' posted by sulla458 @ {post.created_at.to_s(:post_time)}

sulla458 — Fri, 30 Dec 2011 21:17:51 -0000

I have my days where I do get depressed .I am on so many meds.as you inhalers/nebulizer treatments/predinsone/theodure/singular/fovent/flonase/claritin/and so many more /sleeping pills.because its hard for me to sleep.even though i get so worn out.pain meds.which I only take when I cant take the pain any longer/I dont have medicare,i didnt qualify as I use to work when i was young for cash.wasnt smart enough to know that I should be paid by check and have taxes taken out.and the jobs I did have taxes taken out I didnt work enough to get my points in.so only get SSI so thats not much but I am so thankful for it.no home health care.but I know that at some point I will need it.I am so use to being independent.but.I notice that I have slowed down a lot.tire easy and just have no strength.I no my limits.and I do cry at night.not because I feel sorry for my self.because I cant do things that I use to.but I did make my doctor lagh.I told him I took a comper chair and rolled around the house doing house work.because I couldnt stand.I was suppose to stay off my feet due to me breaking my foot(broke when i stood up)thin bones.any way that was back in june.they put a plate and screws in my foot last of sept.it still hurts and the plate sticks out due to my thinness,from CoPd and 30 yrs of steriods.prayers ,hugs and Gods Blessings sent to you from me.you have a wonderful careing spirit .so glad I meant you here.Blessinds always cindy(sulla458)

'Does anyone have a parent with C O P D?' posted by baby girl @ {post.created_at.to_s(:post_time)}

baby girl — Fri, 30 Dec 2011 07:32:00 -0000

Oh honey, bless your heart. you are a very strong person I can tell and it sounds like you have a pretty good attitude about everything that is happening. I am sorry but it seems very cruel to me that your children do not call or visit and I almost can't bear the thought of you going through this all alone because my mom was on oxygen and in the hospital regularly getting 'tune-ups',as you do, it was so hard on here , even with me there to help, so it is very hard to think of you doing it alone. I am taking many of the same medicines that mom took too, inhalers,nebulizer treatments,anti-depressant so I know is very exhausting mentally and physically, the meds make me sick at times but the good out weighs the bad effects mostly... lack of rest.. I mean real rest,is also very draining...Your getting dizzy scares me, especially with no one there to help you, glad you have medicine that helps that.I hope you have home health nursing , they can help you with alot of things, running errands, household chores,etc... and if you have medicare it is free( here in Texas anyway) I don't have medicare because I have always been a housewife, not working outside the home, so I did not earn enough money.But my mom did and it helped tremendously.If you live in the South Texas area I would gladly come to visit you and help you all I can, give you a big hug and let you know that you are not alone. You Keep your head up, we just have to keep on keepin on , one day at a time because God isn't finished with us yet and it is all in his hands just as you said. Prayers, Hugs, and Positive Vibes coming your way... Teresa, baby girl

Smile... The Day will be Brighter when the Sun comes up :-)

'Does anyone have a parent with C O P D?' posted by sulla458 @ {post.created_at.to_s(:post_time)}

sulla458 — Thu, 29 Dec 2011 18:10:07 -0000

thank you I can use all the prayers I can get.I just happen to stummble on this site.I am so glad I did.its alwful to feel alone.and when you feel bad it makes things worse.I have good days and bad days.today is a bad day.between the breathing.and being dizzy its just not fun.I took a pill for the dizzyness.it finally helped some.I,m on so much medicine for my breathing.I was just in the hospital.about a week ago.I call it a tune up.they give back to back treatments antibotics solumed and fluids and oxygen.after I get stable I come home.its become routine. and I wish I werent in the hospital so much.but as my lung Dr.said you have to do what ever it takes to get threw.I am grateful that I have another day.its awlful never knowing when you go to bed at night if it will be your last.but then.being so tired and weakned by this illness,some times you want it over.but I try hard to keep positive.I know its on Gods time .not mine.he will take me home when he ready for me.God bless you and may God Always have his arm around you. sulla458

'Does anyone have a parent with C O P D?' posted by baby girl @ {post.created_at.to_s(:post_time)}

baby girl — Wed, 28 Dec 2011 23:22:40 -0000

Thank you for your kind words,sulla458,I am so sorry and my heart goes out to you, no one should have to go through this without the support of their family. I fear my son won't be around for me either, and feel they will all regret it but maybe just a little too late. You are so right, God sees everything and in the end he will know all of our deeds, good or bad... and we will be judged accordingly. I have found alot of comfort and support here on this site and it helps me not to feel so alone. You just hang in there sulla458 , I will be praying for you... Big Hugs from Baby Girl

'Does anyone have a parent with C O P D?' posted by sulla458 @ {post.created_at.to_s(:post_time)}

sulla458 — Wed, 28 Dec 2011 17:16:18 -0000

all you can do is be thankful that you were there for your mother.dont hold anger towards any one who wasnt there.belive me its not worth it.forgive and pray.God has your mom with him now, he knows who was there to comfort and help your mom.he is the judge in the end.I suffer from COPD as well as many health issues.I have children who dont call or visit.its ok.because in the end they two will have to answer to God.I have made peace with every thing and take a day at a time.God Bless you for being there for your mom.

'Does anyone have a parent with C O P D?' posted by baby girl @ {post.created_at.to_s(:post_time)}

baby girl — Wed, 28 Dec 2011 14:41:37 -0000

I just wanted to drop in to say hello and to send Blessings to you all that are struggling through the care of your loved ones and to those who are suffering the Loss of one, like myself. It has been 8 months now since I lost my Sweet Moma, yet sometimes it feels like only days... it has gotten a little easier , I am not crying as often as I used to ... I am still taking it one day at a time. librarabbit, I agree the most we can do is to do our best to do what's right in our hearts because in the end our loved ones will know the truth of who really cared and did the right things.And we are the only ones that really have to live with knowing if we did the right things. I have regrets even though I did everything I knew to do and was there for my mom constantly, 24/7... but my 2 sisters are the ones that are really having regrets now because they weren't here for her when she needed them most. And I have anger towards them because of it and have threatened to confront them about it but I know that it really would not help anything now, they knew she asked for them all the time and couldn't understand why they wouldn't come to help or even just be with her , so now they have to live with knowing that themselves.All I can do is pray for them and hope that when they get older or in bad health and in need of help... their children will be there for them...In fact that is my prayer for everyone.Because no one deserves to have to go through something this horrific alone.And thank you all who have been here to support me, it has helped more than ya know just to know I am not alone and there are many who are going through the same and understand what I am going through. Peace Blessings and Hugs :-) Baby Girl

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