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brain tumor -- how fast?


Anonymous_avatar
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My dad was just diagnosed with gliobastoma multiforme, a type of brain tumor. It's inoperable and we got the sad news that he has only three to six months to live. He's going to have radiation treatment, but that's just to reduce the swelling, it can't make the cancer go away. We're all really upset and the worst is not knowing what to expect. There's a big difference between three and six months! And we don't know how long he can expect to live independently. Does anyone have any experience to share?


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I am so very sorry to hear about your dad, Anonymous. Being given a time frame is, I feel, both a blessing and a curse. A blessing, in that you know that if there are things to do and say, now's the time to say and do them, while at the same time, a curse because you know too well how soon your life will change.

When my father was diagnosed, it was only days before he died. We spent the time we could with him, and he made sure things were done the way he wanted them - giving direction, signing documents, and just loving us best he could, as we loved him.

Even with all that, I have to say I look back on that time as a very intense, loving time, for we were all together for a while.

My best wishes go out to you.


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I'm very sorry to hear about your dad.  My mother died of pancreatic cancer in 2007 (she lived three months after diagnosis), and my main advice is to call a hospice facility immediately.  They'll help you through the whole process and let you know the kinds of things you can expect--although, of course, every situation is different.  Hospice is the most valuable resource out there, IMO.

And be sure to enjoy the time you have left with him.  You'll eventually appreciate the fact that you had some warning of what was going to happen.  The next few months are going to be very challenging for your family, but they'll have their rewards as well.


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I'm very sorry to hear your news, and wish you and your family strength during the coming months.

I have no information specific to your question, but wanted to add my voice to those talking about the time ahead of you.

I lost my best friend to Breats Cancer, and although the course of her illness was one of the most difficult times of my life, it gave us some beautiful times together too. I remember days spent just being close with her, talking and just making the most of each other.

It's a time to talk and appreciate each other.

 

Thinking of you x


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What Lola said was very true when I was caring for my father, who died of esophageal cancer, also after receiving a prognosis of three to six months.

What I'd suggest is preparing a list of questions for your dad's doctor. Tell him you want the "nitty gritty" version, you don't want him to soft-peddle the information. (Many oncologists will speak much more plainly if you reassure them that you can take it.)

Then ask about everything you want to know: what to expect right away, what to expect down the line, and what can be done for your dad to make him more comfortable as the cancer progresses. Good luck, and keep on checking in; I'm sure we'll hear from more folks with stories to share.


Anonymous_avatar
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So sorry to hear about your father - this time must be very difficult for you and your family.  My mother passed away from brain cancer and from diagnoses until she passed was about 9 weeks.  I have also had 2 friends pass away from brain cancer, all were approximately 9 weeks.  For a better answer to your question, I would keep an eye on his motor skills, his speech, the names he calls his children, what he calls familiar things, etc.

My suggestion to you is that while he is still cohesive enough, he get things in order.  Consider getting a living will, durable power of attorney, executor of the estate, advanced health care directive, etc.  You don't want to be in a position of going into probate.  Also, if he is on Medi-Cal, you can call In-Home Support Services at 408-975-4899 for some assistance in caring for him if you plan to keep him at home.

Best of luck to you during this very difficult time.


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My wish is for you to have it easy. I know there is nothing easy going through what you are dealing with?? Please do all that was susgested by the person above. Get power of attorney so you can make the desisions that are necessary. Make sure the will is in order so you can settle everything after it is all over. Don't want to go to court and have all the waiting and fighting over his belongings. If you are taking care of him,you know what he wants done with all his belongings. So I wish you all the luck and my prayers are with him and you. I know it is so hard to sit by and  can't do anything for him but show him lots of love and attention. I hope and pray that God answers our prayers and heals him. Anything is possible with GOD. May you find peace and comfort and him too. Let him know how much he is loved and cared for?? Makes them feel better. Yes,I have gone through  it with both parents. My Mother died of breast cancer,in 69, my Dad died of Dementia15 years later. I took care of both of them and would not trade anything for those last years I had with them and their stories they shared with me. Things I had never heard from them before,so It was so interesting to know all these things about their lives and when we were babies,what we did? How we lived? All the sweetest stories to find out from them. I wrote it all down so I can make a book of it of my parents lives and ours too,in a way?? I treasure those stories so much so get them to talk and share their lives  when they were young,So enjoyable to hear these stories. My prayers are with you dear one,May God blessings be with you and him. Mildred


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My 81 1/2 year old dad recently (3/2009) passed away from brain cancer which was diagnosed in 10/2007.  As far as we know, because he was a quiet but hard working man, 20 years younger than his numbers according to the doctors, he started showing symptoms in June/July - his "gait" was in the form of a shuffle.  The doctors sent him to orthopedic surgeons.  In August he couldn't figure out a simple milage vs. gals. of gas question and back to the doctor he went.  Had a cat scan, dr. said he had a  brain tumor, biopsied, said it was stage three and he had maximum 2 years to live.  He had several small seizures which required hospitalization and large quanities of the drugs that shrink the swelling in your brain.  In January of 2009 he had a seizure and went to the hospital for five days and then into Hospice Residence where he lived for 2 1/2 months fighting an amazing fight.  He went there because he couldn't walk and my 80 year old mother couldn't take care of him any longer.  He had no pain except for the nerves under his very very thin skin were super sensitive in the last 3-4 months.  You couldn't really touch him except very gently - he refused pain medicine and only got it when he somehow missed what they told him it was.  He was an amazing man - I wish you could all have known my dad!! 


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 Dear Annie,

your dad's fight sounds so much like my dad's -- spirited until the end. My heart goes out to you in your loss, but I also commend you for the care you gave him; it sounds like he had good treatment and they did all they could do. My dad also went faster than the maximum time the doctors gave him -- my sense is it can be hard for them to predict how aggressive a cancer tumor will be. I appreciate your description of your dad's symptoms, because may others will read this and will send their parents to the doctor if they have similar symptoms. Brain tumors are much more common than most people realize, and can cause symptoms that are easily confused with dementia and other illnesses. Thanks for sharing and our thoughts are with you.


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Dear Annie,

My late dad had one remvoed and treated with radiation along time ago when he was 58. He was diagnosed again about about 5 years ago when he was 82. He had a pretty good quality of life although he was under pain mangagement with methadone and quick release morphine for a failed back operation or the back operation just wore out. He was able to drive and do light work aroung his house. However, the second tumor he had at 82 was glioblastoma IV. He soon entered a hospice where he got excellent care. It sounds harsh, but do the durable power of attorney and get the estate settlement rolling. At least he did not unduly suffer. He developed some more pain from the tumor crowding everything in his head. However, his pain was relieved. By the time he lost the ability to stand up and any coordination death was near and he died peacefully. It is rough, no doubt. My blessings and codolences. Ratly


Anonymous_avatar
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I graduaed with biology-government minors at U of Tex.I do not trust many Mds who are allopathic as most are.I know there sights are set on one thing only and they have no choice if they wish to continue to practice-money and drugs/alternative ones are much better and they can and will cure as matter of course instead of thinking about money.Royal Rife in 1932 had a generator which cured 16 of 16 so called incurable patients and his MD friend were poisoned and their labs burned down as their cure was too cheap and not pharmacuetical meaning a loss of millions of dollars every day to the professionals and pharmaceuticals.They could not accept this.I was showing off a rife machine in pilippines and I too was poisoned with garlic as was my girl friend.I had anti-dote.Beware of burning throat symptoms even if eating ice cream as it is likely arsenic poisoning.


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Brain tumor. Dont be afraid hope, prayer every day. But at 81 god bless him. I hope he feels ok.


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I have been through several cancers. The first one scared me. After that I got stronger with the rest and accepted them. But was mad.


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My father in lay just passed at 93. Pretty good till end. Went to church after went to Wendys ,loved that. But when it was time he told us I dont think I can make it much longer. He didnt. But what a life and lots of stories.


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Bullman,

 

Going to chuch and then to Wendy's and was at peace. That is good to hear. However, you never get over losing your father. Happy Easter,

 

Ratly


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Ratly, You're right...you never get over losing your dad. Mine died of a brain tumor in 1984. In hindsight, we realized all the symptoms that we couldn't figure out in the yr or two before he was diagnosed. I still miss him.