The agencies and organizations listed below can provide additional information and guidance as you search for high-quality hospice care.
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American Cancer Society
800-227-2345
www.cancer.orgThe American Cancer Society maintains 3,400 local offices nationwide. Its website provides information on hospice care and how to find and pay for it.
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American Hospice Foundation
2120 L St. NW, Ste. 200
Washington, DC 20037
202-223-0204, 800-347-1413
www.americanhospice.org
This group's website has links to publications, courses, workshops, and self-study courses in grief management and other issues related to death and dying. -
Hospice Patients Alliance
4680 Shank St.
Rockford, MI 49341
616-866-9127
www.hospicepatients.org
This consumer resource for hospice patients, their families, and caregivers promotes patient rights and provides information about hospice services. It directly assists patients, families, and caregivers in resolving difficulties with current hospice services. -
National Association for Home Care & Hospice
228 Seventh St. SE
Washington, DC 20003
202- 547-7424
www.nahc.org
This hospice provider association advocates the industry's interests before Congress, regulatory agencies, other national organizations, courts, the media, and the public. Its website provides consumer and industry information and news about hospices. -
National Hospice and Palliative Care Organization
1700 Diagonal Rd., Ste. 625
Alexandria, VA 22314
703-837-1500
www.nhpco.org
This group aims to lead and mobilize social change for improved care at the end of life. -
U.S. Department of Health & Human Services
Centers for Medicare & Medicaid Services
7500 Security Blvd.
Baltimore, MD 21244
www.medicare.gov
This government agency and website provides detailed information about Medicare's coverage of hospice care.
I figured with a name like resources, where to find help, you'd have a list of hospice locations and contact #s SOMEWHERE, but I guess not. I have to go now, back to SNF we ended up choosing because we were out of time to look after three days. We had wanted something in association with Catholic religion/nuns, but nothing found.
After almost a month of helping our Mother, my brother and I realized we were not the "super-helpers" we thought we were! We realized that after the 12+ hour days, we were so tired and needed help. My brother asked our Mother's cancer doctor. We found out that he "headed" his own "Hospice Team"! He geniunely cared about his patients - even beyond the hospital walls! How lucky we were - they were so nice and so caring! Hope that helps.
I frequently refer to Assisted Care Facilities when I feel it is appropriate and predicated on my carefully evaluated the Facility(s) I recommend. I Also recommend to my clients that they try it before they buy it.
Good knowledgeable Information. Do you also refer the cases to assisted living homes?