Gail Sheehy, Part 2: In Charge…But Not in Control

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Last updated: July 07, 2010
Serenity Prayer

You’d think someone like Gail Sheehy would be too clever to fall into the #1 trap of caregiving: Overdoing the job to the point of thinking it's all up to you. After all, she’s written numerous books about how to navigate life’s important junctures (Passages, Pathfinders, The Silent Passage). A longtime journalist (contributing editor to Vanity Fair, Parade), she knows how to ask questions and get answers. She’s a quick study.

But fall she did.

By the time her husband, editor Clay Felker, faced the final stages of a 17-year, off-and-on cancer battle, Sheehy was successfully lasering so much care and energy toward him, she was like Luke Skywalker in full battle mode. “I’d become good enough at caregiving and knew enough to become cheeky with doctors,” she says. “You begin to think, ‘I saved him from the wrong medicine…I got him walking in the hospital…I got him into the right rehab….’ You think that you’re the only one responsible for warding off disaster and death day by day.”

Just like Luke Skywalker…or an even higher power. “I didn’t know it, but I was playing God,” she says. Playing God is very common among hands-on caregivers, she says in her perceptive new book, Passages in Caregiving.

“If everything goes right – good. You feel responsible for keeping your loved one alive,” she says. “If something goes wrong, and it will, then you feel like it’s your fault. That’s where the guilt comes in.”

Careening between agitation and depression, Sheehy also developed shingles. She ignored the itchy rash at first. (“No time for doctor visits for me. I couldn’t afford to be sick.”)

Her doctor finally laid it on the line: “You’ve been exercising [she’d tried yoga classes for stress relief] but you haven’t been doing any spiritual conditioning.” Full of egotism but lacking an active faith, she says, caused her to bottom out. She had nothing but herself to support her through her fears and worries. “I had become powerless over my fears,” she recalls.

It might sound odd for a doctor to prescribe faith as a remedy for fear. But this was a good friend. And Sheehy says the advice was a wake-up call that saved her. Her rather unusual way of jump-starting her faith was to join a 12-step program, not a church -- but the takeaway message isn’t how to surrender to a higher power; it’s simply to do so. Let go, through whatever form of spirituality works for you, of the misguided notion that the buck stops with you.

Sheehy says her caregiving became easier after she lived by the Serenity Prayer: God grant me the serenity to accept the things I cannot change, the courage to change the things I can, and the wisdom to know the difference.

Whatever form of “spiritual conditioning” you favor, it's a message worth leaning on.

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6 Comments So Far. Add Your Wisdom.

12 months ago

Yes, a spiritual foundation and good friends are two keys to caregiver survival. Even though I'm a retired teacher and used to being in control, I let go of that control from the very beginning of caregiving for my mom who has ALZ and Parkinsons. Very simply, I just told my sibs that I can't do this alone, without your help. Support groups are good, too. Last week my brother called me to say that he found mom naked and laying on her floor in the morning. After the flury of getting her up, cleaned up, etc...all three of us were totally drained. I called my friend Pam for moral support. She invited my brother and I to a Sat. eve function at her church to see ethnic dancing and eat great food. We got a care worker to take care of mom that night. Pam also brought over some homemade breads. We needed that.


12 months ago

I need to accept change---each level of Parkinsons is different, and UNexpected ! It is hard to accept. This article was good for me !


over 1 year ago

Anonymous-- yes, stress, isolation, maybe a bit of depression, and even a kind of grief all sneak in at you through no fault of your own. Mlyn is right about turning to friends -- it helps just to talk to them even if you don't exactly know what specifically to ask for. By talking, they might also get ideas on what you need that you don't yet see yourself.


over 1 year ago

Call your friends and ask for help. I just did last week. One of my friends is making some dinners for my mom, and another spent a day with me just getting all of mom's paperwork organized. These are specific things I needed help with. Good luck to you!


Anonymous said over 1 year ago

Thank you for that, it was just want I needed. Today has been a very tough day for me, I am not sure why all I know is that I feel like I have bombed out. I am caring for my husband who is in the moderate stage fo alzheimers disease. While he appears to be doing well it is me who seems to have the problem. I can't put my finger on it. I am not sick however I feel very sad and overly tired. I don't know if I am heading toward depression or is it that I am trying very hard to cope with the changes I see on a daily basis with my husband. I feel so alone even though I know that I have friends that care and love me, but how can i tell them that I need help when I don't know what help I need.


over 1 year ago

hmmmmmmmmmm! Are you talking to me?


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