My sister is jeopardizing her children by having our mom with Alzheimer's live with them.

  • 80% helpful
  •  
  •  2 Comments
  •  
  •  
  •  
  •  E-Mail
  •  

Last updated: January 14, 2010

Every time I mention something about finding a good home for Mom, who has Alzheimer's, my sister bites my head off.

Mom lives with my sister and her family. But Mom screams all the time, tries to bite, hallucinates, and is downright ugly to my sister and her kids. Being exposed to all this can't be good for the children. They hide in their rooms playing video games, and they never invite friends over. My sister’s putting our mom first, at her kids' expense. Yet every time I mention something about finding a good home for Mom, my sister accuses me of trying to "dump" her. Am I interfering too much?

A few years ago, you could have been my sister writing about me. My mother had Alzheimer’s, and toward the end my children were subjected to too much caregiving and all that comes with it. Our home was no longer a healthy place to raise a child, and I realized the depression, despair, and mental climate could adversely affect them. I’ve never felt so torn, and my heart goes out to all of you.

While I strongly encourage family caregiving and multi-generational households, there can come a time when it’s too much for a family to deal with -- physically and emotionally. You’re probably right about your situation: It sounds like your mother’s dementia has escalated to the point where it isn’t healthy for the children to be subjected to some of her behaviors on a daily basis.

I don’t think talking to your sister about this is interfering too much. As family, we can say things that other people can’t. She might not listen to you -- and she has the right to decide what’s good for her kids and what’s not -- but as your mother’s other daughter, you have the right to speak up and offer alternatives that might be better for everyone involved.

Every family has its own dynamics. How have the two of you worked through problems before -- does letter writing work? Tears and pleading? Or do you need a full-scale intervention to get through?

If she’s biting your head off, that tells me she probably has her own doubts. Try asking questions instead of making statements. Gently ask, “How do the kids say they feel when their grandmother bites or sees things that aren’t there?" or "Do you think _____ feels less important now that Mom needs so much attention?” She can mull these things over in private later on, when she has a moment to grapple with her emotions. This approach will help keep her from getting too defensive.

Also reassure your sister about what a good mom and daughter she is -- again and again. Empathize with her over how tough this is and thank her for being willing to try so hard to care for your mom. Tell her she’s not alone, that you want to help, that the two of you can figure out what to do together. That will help keep her from feeling that you’re swooping in and taking over or implying that she's a bad caregiver or mother.

If you can get her to open up, try to find out what she means by “dump” your mother. Is that something your mother always feared? Does she have a negative perception of care homes? Maybe you can help your sister work through her false assumption that placing someone in a care home means that you don’t love her.

This kind of gentle persuasion may help your sister begin to see that her life doesn't have to be out of balance, that she might be even a better caregiver if she didn't have such a heavy load, and that her children need her to be there for them now.

She might dig in her heels for a while, and you may have to find other ways to help her and your mom, but don’t give up. They need you. Can you offer to help out one day a week so that she can run errands, attend sporting events with her kids, get her hair done, or go on a date with her husband? Can you commit to do something with her kids once a week to get them out of the house? There’s nothing like having a “cool” adult in your life when you’re young -- someone who gives you a break from day-to-day realities.

Watch for signs of depression, anxiety, or acting out in the kids. If things seem truly unhealthy, risk a big blowup and push -- with kindness -- to persuade your sister that this is too much for her family to have to cope with.

As someone who cared for a mom with Alzheimer's, I have to share with you that things aren’t likely to get better -- it's tough from here on. Your sister needs to know this. Your mom will probably get worse (anything from more outrageous behavior to going catatonic and becoming bedridden), so you need to plan for what might come next.

Suggest that your sister visit some nearby group homes with you just to know about options if things do worsen. Offer it as a no-pressure, "let’s just check it out" kind of thing. Do some research first and eliminate ones that would turn her off. Look for those that specialize in dementia care.

This disease is hard on everyone, especially on our relationships. Keep a tender heart toward each other. See the good everywhere you can. In the end, all you can do is love one another and hold on.

Was this blog post helpful?
Share this

2 Comments So Far. Add Your Wisdom.

over 2 years ago

You say - "But Mom screams all the time, tries to bite, hallucinates, and is downright ugly to my sister and her kids.". I just wanted to tell you I had to deal with this type of behavior and worse. What was causing it was the prescription Alzheimer's drug. The doctor said it was not the drug it was the Alzheimer's and wanted to increase the dose. That perhaps another drug might help with the behavior. My father and I talked it over and decided to stop the Alzheimer's drug. This upset the doctor. But we were the ones that had to take care of her. We thought the best option would be to stop the drug and see what happened before adding more. This was the best thing we could of done for mom. The first few days we thought things had changed but not enough to be certain. Then it became evident as time passed. It took about a full month before she recovered from the effects of that drug. The doctor never would agree that the drug was the cause. But after we stopped giving it to her she never again exhibited those negative behaviors. She was so bad while on that drug and it exhausted so much we never were willing to put her back on it. Although Alzheimer's can cause changes in behavior I would want to eliminate the possibility that it was not a reaction to a drug or combination of drugs. Being like that isn't fun for mom either. Imagine living the rest of her life like that because of a drug you gave her everyday and finding out it wasn't her it was the drug. The reason we decided to try stopping the drug was because of my grandfather. He ended up in a nursing facility. Before long he was being prescribed drugs. Over time more were added until he was taking 15 different prescriptions. At this point he didn't want to do anything and spent must of his time just sitting and not interacting with anyone. My father had him weaned of all the medications and my grandfather became himself again. He spent the last five years of his life helping other people at the nursing facility and made many friends. Our visits changed and we felt much better about him being there. When they had him on all those prescriptions it was depressing to see him just sit there. Only bothering to answer the questions he wanted to answer. But that changed when the drugs stopped. When we would get there for a visit he was with people talking. He was happy to see us. During the visit people would stop by his room to say hi or talk. Sometimes prescribing drugs and more drugs isn't the answer. Unfortunately doctors seldom stop giving a drug unless it's life threatening. If the drug causes a side effect they will often prescribe a medication to address the side effect. This isn't all doctors but this is very common. Drug stacking is something I'll always be suspicious of now. Sometimes less is better. You always want to research ALL the drugs given to a person with Alzheimer's. Don't just listen to doctors. I learned this the hard way and not just with the Alzheimer's drug.

Hugs Kaenlm


over 2 years ago

The fact that your sister's children are being negatively impacted is VERY serious, and you two sisters DO NEED an IMMEDIATE discussion. However, more information is needed. What are the ages of the children? How long has your mother lived there with the family? When was the last time your mother saw her neurologist for medication adjustment? Your exclusive focus on the well-being of your sister's children overlooks an important component of the situation, and THAT is, the current medical status and needs of your mother. These could be important pieces of the puzzle, but are not addressed in your blog. The fact is, some of the behaviours your mother is exhibiting may be partly *a result* of living with your sister and her children. Many people with AD are intolerant of loud noises, disturbances, rapid movements, or rapid/hectic anything! Consequently, you might rethink your approach to speaking with your sister. It may very well be that *living with the children* is as unhealthy for your mother as it is for the kids... Another "classic" caring.com editorial blog - *VERY* well-intentioned, yet sadly myopic... ©suzannemcable.2010


Default_avatar-hhd399496100
Stay Connected With Caring.com

Receive the latest news and tips in your inbox

Join our social communities:

Best in Health News

Carol's Calendar