My dad's in hospice at my home and I’m in no mood to celebrate the holidays.
By Carol O'Dell, Caring.com contributing editor
Last updated:
November 24, 2010
SandwichINK
said...
over 1 year ago
I'm so sorry to hear of your struggles. It is so hard to balance everyone's needs, isn't it? My senior dad entered the end stage of Parkinsons Disease and was put in hospice at Thanksgiving a few years ago. He passed away in early January. I cancelled my holiday programs and plans but we did put up a simple tree and Christmas nativity set as an encouragement for my grandchildren and children. Because of a difficult pregnancy (twins who blessed us a week after dad went home to be with the Lord), my daughter and her two children came over every day so she could lay on bedrest on my couch while i cared for the grandchildren. My senior parents were living comfortably in my master bedroom and I was busy caring for all, with hospice workers coming and helping often. It was definitely one of the two hardest Christmas seasons of my life, but by helping the others, I found much encouragment.
One important thing to realize is that you are already going through the grieving process. And it's so vital to realize there is no right or perfect way to grieve. We each do it differently. I liked the suggestions above to talk it through with others and allow each to make their own decision of what to do, without them or you being considered "right or wrong.". I spent a lot of time in prayer in the middle of the night, made sure I took occasional brisk stress walks, and trusted God to keep me going which He did. Some family members did go out and that was fine. I knew it wasn't the right thing for me and that was ok too. We need to give ourselves permission to say No, as well as say Yes.
I, personally, would look for ways your children can celebrate, perhaps going out with friends. You might also want to continue some of your simpler traditions - perhaps in a quieter way. Your children may not be home much longer, either, as they get older, and these times of family togetherness, even in the midst of sorrow, can be times that bond you even closer together.
My senior dad did join us for a couple of quiet family get-togethers at my house - they had come to see him but he wasn't up to staying out with everyone the whole time. So he came out for a few minutes, and then headed back to bed. One at a time, with plenty of breaks in between, different family members went back to spend special quiet moments with him. We have such lovely memories of these times, and even some very precious photos to help us remember these joy-filled moments in spite of such a difficult time.
My prayers are with you during this season of life, for comfort, encouragement, and wisdom.
The Caregiver's Voice
said...
over 1 year ago
If you don't feel like celebrating, don't. The commercialism of the holidays is a lot of "noise" when you consider the life and death situation of your family right now.
HOWEVER, know that the 10 and 15 year old are impressionable. This may be their first experience with death. How you handle it will be a model for them.
Perhaps, imagining the following might help you...IMAGINE you are your dad and your children (a bit older) and caring for you. How would you like them to behave, feel, be?
GRANTED you do need to focus on yourself...I wonder if this has hit you a lot harder than you can bear. Talk with HOSPICE as they are experienced in helping family members get through this time.
REMEMBER this time will be remembered by all of you--in your unique ways.
Until then, please do let us know how Thanksgiving went.
bosco2blessed
said...
over 1 year ago
Live for today right now. It would likely make your Dad's spirit; as well as yours and the entire family's; much lighter if you make each day your Dad is with you a celebration. The difficulty is getting to the celebration once in it you won't even recall why you were apprehensive. Enjoy each day your Dad is with you. Mine is gone but I have so many festive memories that bring smiles and laughter in the midst of the tears. My son reminds us during our celebrations now the moments that would have likely made Grandpa smile.
beatbreastcancer
said...
over 1 year ago
Oh, I know this pain all too well. My father was diagnosed with lung cancer (spread to liver, bones) right before Christmas in 1983. We were all in shock and trying to absorb the ramifications of all this; also, Dad was in the hospital over Christmas, one of my brothers had just gotten married and brought his new wife home to meet us, and we were sort of working on autopilot. It was a very stressful time; I remember thinking at the time that all the laughter sounded sort of forced and desperate, like we were trying to be as normal and get as much enjoyment as we could while trying to ignore the 800 lb. gorilla of cancer in the room. Dad came home for his birthday in January, then went back to the hospital and died one week later. He was 59. There's a lot of that time that's a blur because of the shock, but I really feel we needed to have that touchstone of normalcy in a world that seemed to have turned inside out. That being said, you need to see what works for you and your family. I think all the suggestions so far have been really good ones, especially having the organization and work contributed by your sister; you've got enough on your plate right now. Find out what your dad and family want, let them organize it how they want, and you make sure to take time for you with and without your dad. Please take care of yourself, and come back here to let us know how you're doing, if it helps. We're thinking of you.
frena
said...
over 1 year ago
i'm so sorry you're having all this to deal with. it's hard. but life does need to go on at least somewhat normally (because that's what life is -- it goes on). sorrow and struggle AND life going on is the deal. why not open your heart more to your children? they're old enough to understand your feelings. ask them to take over having your own family home be a little Christmassy. Let them do it how they choose, as much or as little and respect their choices. and leave the big show to your sister, knowing everyone has different ways to deal with the big situations. and YES, you do need to do something for your children during this difficult passage. this is one your great teaching times with them -- how we sorrow and yet support life itself. respect your own grief too and use this time to share deeply with your Dad. it will help both of you more than you may know right now.
bradleau
said...
over 1 year ago
I came close to dying a couple of Christmas' ago. My daughter put up Christmas cards on the door, and hung a wreath. I could not do it, my husband was over the hill with stress, job, and my illness. Last year we drove to Wisconsin to be with my daughters inlaws. Had a great Christmas with extended family. Even had a good deep snow. This year I HUNG the wreath, put some lighted deer in my windows, and may even get my tree out and up.
I have always enjoyed Christmas with the decorations, more so than gifts.
Have your children and extended family help with decorating, and get a promise from them to take it down and put it away after New Years. Your father may really enjoy seeing that you can "get on with your life." My grandmother died the day after Christmas, and her son, my father....died the following Valentines Day. We still remember fondly the effort these two put into making these days special.
ljamick05
said...
over 1 year ago
My prayers are with you, also, but you need to go ahead and have Christmas. I've been there and know that if you do this, you will give your Dad a happy last Christmas and your family another great Christmas with him, as well as a chance to say goodbye to him, and him to them, if not in words, in spirit. It will give them another good memory of your Dad. In your case, you know it's the last Christmas you'll spend with him, make it a good one. Usually, we don't know, and sometimes wish we had.
dagaro
said...
over 1 year ago
My prayers are with you. This is a sad time but you will get through it. My father died just before Christmas and I also along with my mother did not feel like celebrating. However, I had children in the home to think about. We put up a tree and did fix a small Christmas dinner for the family. It helped take my mind off the sorrowful time and the sadness my mother was feeling. I would sit alone in front of the tree at night and just watch the lights. It was a peaceful feeling. Perhaps your father would like a little lightheartedness. A simple tree and lights might also help him. He also is grieving.


