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Tuesday October 20, 2009

Forgetting Faces: What It's Like to No Longer Be Recognized by Your Dad

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What could be more elementally human than recognizing people -- the loved ones who feature in all your family memories, the friends you wave to on the street, the special face you wake up to every morning? I can't imagine what it must it feel like when Alzheimer's or another dementia turns those once-familiar faces into blanks.

But I well know about being on the receiving end of a blank stare. I've experienced the strange sensation of not being recognized by your own parent.

Intellectually, you understand the day might come. You know it's not unusual that recognizing people will become a challenge for someone with later-stage dementia. But the first time you're called by another name, it jolts. The gulf between you seems to widen.

The first time Dad introduced me as his "sister," my heart sank. It was a confirmation of what I'd long suspected, that he only vaguely got who I was. He seems to register me as family (as opposed to a total stranger), but can't quite place me...  Read more


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Thursday October 15, 2009

10 Signs of Caring Too Much

No Broken Hearts
Image by Mykl Roventine used under the creative commons attribution license.

Compassion fatigue -- a.k.a. caregiver burnout -- is what happens when a well-intentioned caregiver crosses a hard-to-see line from One-Who-Helps to One-Who-Needs-Help. And it can happen to anyone. It happens precisely because you care so much.

Are you at risk of caring "too much"? Here are ten warning signs:

1. You use words like "always" and "never" with regard to caregiving.

Beware falling into absolutes: "I promised Mom we'd never put her in a nursing home." "I'm sorry I can't go to lunch because I always feed Sam by myself."

Being overly rigid can put you at risk for burnout.

2. Your friends seem to have stopped calling.

You may be feeling isolated or annoyed that your old circle no longer seems to check up on you and how you're faring...  Read more


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Thursday October 01, 2009

Caring for a Spouse? 5 Reasons Stressed Spousal Caregivers Miss Out on Help

Old Couple
Image by bravenewtraveler used under the creative commons attribution license.

Stress and isolation are risks for all caregivers, but those who are caring for a spouse can be especially vulnerable. Factors unique to being a spousal caregiver raise the odds that someone in this situation will miss out on helpful resources –- and in turn raise his or her own risk for depression, disease, and even death.

(Though research shows that risks vary by age, gender, and the spouse's condition, they exist whether the spouse is caring for a husband or wife with dementia, cancer, heart disease, stroke, or other illnesses and disabilities.)

Obviously not everything about caring for a husband or wife who's ill is grim. But the grim parts can be as dangerous as they are often overlooked.

If you're a spousal caregiver, please consider the following factors that point to a need for giving in to more help, not less...  Read more


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Tuesday September 22, 2009

Sex and Alzheimer's: Love Stories, Sad Stories, and Lots of Questions

With Love...
Image by suchitra prints(Away for a few days) used under the creative commons attribution license.

Sexual urges don't stop just because Alzheimer's or another dementing illness invades the brain. Sometimes this is a blessing; some long-married couples say that the mind and body long remember the behaviors of sexual intimacy, even when short-term memory is on the fritz, which helps reinforce their closeness despite the disease-related adversity. Sometimes, on the other hand, sexuality coupled with dementia can cause big problems.

Few of us care to think about our parents having sex at any age or in any circumstances. But when the circumstances include dementia, certain issues might sidle up to a caregiver anyway. Reading this terrific legal overview in the Washington Post about an Alzheimer's rape case is a great reminder to family caregivers that sex is a fact of life (sometimes a thorny fact of life) all through life.

What are the most common minefields?

  • A consenting couple, in which one party has Alzheimer's, but both enjoy the sexual relationship...  Read more

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Tuesday September 15, 2009

Patrick Swayze's Last Wish

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Patrick Swayze lost his battle with pancreatic cancer Monday night, after waging a brave battle during the 20 months since he announced his diagnosis. It may be Swayze's romantic turns in Dirty Dancing and Ghost for which he's best remembered, but cancer patients will never forget how Swayze turned his own battle into a public plea for help for all those affected by this terrible disease.

It's his own words that provide the best memorial for Swayze, who was only 57. "I keep dreaming of a future, a future with a long and healthy life, a life not lived in the shadow of cancer, but in the light," he said in the live television event "Stand Up to Cancer," which aired in September, 2008.

In February of this year, Swayze published a straight-talking op-ed piece in the Washington Post titled, "I'm Battling Cancer. How About Some Help, Congress?" He urged senators and representatives to vote...  Read more


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Wednesday August 12, 2009

Prolonged Grief, a New Psychological Disorder?

Wat een mooie dag
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Say it's been two years since your father died and your mom still won't socialize or quit talking about wanting to join him. Or you can't shake a sense of meaninglessness to your life as the anniversary approaches of the death of someone close to you. Sounds like prolonged grief disorder, psychiatrists might say.

Prolonged grief disorder (PGD) -- previously called complicated grief – may soon be a recognized mental disorder. Researchers at the Dana-Farber Cancer Institute in Boston developed and tested standard criteria for identifying the condition, based on the input of a team of experts in bereavement and mood/anxiety disorders. That's a major hurdle on the way to inclusion in the next edition of the Diagnostic Statistical Manual of Mental Disorders (DMV-5), the psychiatric care bible for diagnosing problems. The research was done with widows and widowers but is thought to be applicable to the general population...  Read more


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Friday July 17, 2009

Save Money -- And Strengthen Family Ties -- With A Multi-Generation Vacation

Quintessential Camping Photo
Image by Gare and Kitty used under the creative commons attribution share alike license.

On a recent trip I was struck by the number of three-generation families I saw vacationing together. And I noticed the ways in which this arrangement works well to give everyone some much-needed relaxation while keeping costs down, as well.

I chatted with some of the families I met, and heard over and over again how the current economic crisis is leading people to try new solutions, such as combining family resources for a vacation.

I've also heard from many friends that financial troubles are preventing them from flying home to visit family over the summer, as they typically do. And, of course, this is sad for everyone.

So here, after many conversations, are some ideas for how multi-generation families can join together to help everyone afford a vacation, even in tough times:

• Pick a central or accessible location based on cost. One family I met was divided between Oregon and the San Francisco Bay Area; they selected Mt...  Read more


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Thursday July 16, 2009

Close Ties to a Caregiver May Slow Dementia Progress

I wanna hold your hand
Image by batega used under the creative commons attribution license.

Here's news that may console you on those inevitable "bad days" when you feel a bit trapped by the demands of caring for someone with Alzheimer's disease or another form of dementia: A close relationship to a caregiver can slow the progress of Alzheimer's, researchers say.

In the September issue of The Journals of Gerontology, researchers at Utah State University, with colleagues at Duke, Johns Hopkins, and Boston University, report that the quality of the caregiver-recipient relationship can influence the course of Alzheimer's: Higher levels of closeness were associated with slower cognitive decline. For this long-term study, researchers followed 167 pairs for an average of 20 months. The effect was greatest among spousal caregivers with close relationships, but held among all positive caregiver-recipient pairs.

Next their research will try to tease out what specific kinds of interactions and activities seem most helpful...  Read more


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Tuesday July 07, 2009

Life's 5 Most Important Lessons

Fishing at Sunset - Pacific Ocean , California
Image by moonjazz used under the creative commons attribution share alike license.

Taking care of an older family member or friend can be stressful. But so is being that person. One wonderful way to ease the stress burden on both of you: Help the person close to you define and preserve his or her legacy.

"Legacy" may not be a word most of us use in everyday conversation, but it's a concept people tend to give considerable thought to once they head north of their 60s and 70s. Shaping and understanding your legacy refers to sorting out what your life has meant, and what kind of memories of you are apt to live on after you die.

What a person learns and leaves is as individual as his fingerprints. But I found some heartening insights into common themes in this new research from Priceless Legacy, a company that turns interviews with older adults into life stories in print or video format. An analysis of its projects shows that the top five life lessons shared by people ages...  Read more


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Thursday July 02, 2009

"One Day at a Time" and 4 Other Caregiver Stress Coping Traps to Avoid

Desktop Calendar 04/2008
Image by +Angst used under the creative commons attribution license.

One of the more stressful aspects of taking care of an older adult is the not knowing. Nobody knows the future, obviously, but a caregiver's is doubly affected by the mysteries of someone else's reality, over which you have little control: How long will this phase of your life go on? How will the person's medical condition(s) progress? And what will that be like? How long can a parent live alone? How long can you stretch out the money? What about your own health, or marriage, or job; will they hold steady?

Many caregivers deal with the stress by using one of the following coping strategies. Unfortunately these comforting old saws are often more like traps: less calming than they first seem. Escape by giving them a few tweaks.

Trap: "Take it one day at a time."

Better: Take a peek around the corner.

Taking a hard situation day by day brings the undeniable benefit of making 24 hours seem less overwhelming...  Read more


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