World Alzheimer's Day and Why People With Alzheimer's Need It

PINK GIN

about 1 month ago

AS I sit here at the computer, I am listening to my loved one talking away to someone in her imagination,,She is now in home based Hospice care and these folks are wonderful..My heart really aches because Margaret has now begun to say she hates me and I need to take her home,,,Although I know just about everything that is going on, I still come ac cross many shocks. The Hospice Nurse gave me a booklet called " Gone from my sight " and this explains all that I should expect,,down to the final details. Must say that in the last 36 hours, I have had only 10 minutes sleep ( at the most ) due to the constant need to be here...Yep, it's a horrible thing to go through and as the end nears in leaps and bounds, I find I am beginning to grieve and become extremely lonely and it doesn't look like we will make it to 50 years together...Bless you all the Angels for caring about others,,my heart goes out to anyone involved in this scourge.... Love..PINK GIN

my mom just passed on oct.2 2010. the journy for the last decade has been totally devistating .To make things a little more bearable, i suggest you get your loved one on depression meds. ASAP, second, dont try to correct them of their memories,this really only annoys them. just go with it(remember, this is not something you can fix). its hard to understand untill youve been through it. all you can do is put a smile on your face, & help them feel safe.this disease is the MOST painful, mentally as well as physically, for YOU & your loved one. if i could help anyone,and everyone go thru this i would.

tomtaz56

over 1 year ago

Read well This is a devastating disease, for the patient and their families. you lose your loved one long before they die. my mother had dementia a form of alzheimer's, I lost her 3 months ago to the day. she suffered for a good 7 yrs. I was her only care taker. serioussue, Sorry for the lost of your mother, I lost my mother over 20 years ago and I still try to call her. I do not want to hurt your feeling but people need to understand. Not only were you the only care taker you were just a care taker not a daughter. To me the worst part of this disease is losing your love one in front of your eye's! My wife's mother has walk down this road for the past 3 years, before this summer she would talk a little, fed her self and forgot a lot. This summer we have lost her for good she does not remember her husband who has been with her since she was 14 years old. She's 65 now. She does not know my wife's name. basically all she can do get up, get fed, and walk around the house with no reason head down arms to her side. when she sits down she looks like she's sick she can not hold her head up. A question serioussue at what year of the 7 years. did you notice the major change in her?

DeniseG

over 1 year ago

For those not yet familiar with the reach and impact of this disease in America, here is an infographic that illustrates why more attention is needed to this public health crisis: http://www.caring.com/infographics/alzheimers-disease-by-the-numbers

Laura_ICARAS­tudy

over 2 years ago

It is important for patients and families affected by diseases such as Alzheimer’s to consider participating in clinical studies. One such study is the ICARA Study (www.icarastudy.com), whose goal is to explore if an investigational drug, called Bapineuzumab, can help slow the progression of Alzheimer’s Disease. Clinical studies that test new treatments are the best chance we have for fighting this disease. Current therapies for Alzheimer’s treat the symptoms associated with it, not the disease itself.

serioussue

over 2 years ago

this is a devastating disease, for the patient and their families. you lose your loved one long before they die. my mother had dementia a form of alzheimer's, i lost her 3 months ago to the day. she suffered for a good 7 yrs. I was her only care taker, i finally had to put her in a convelesant home , she needed 24 hr care and i couldn't do it by myself. i visited her everyday, i miss her so bad. so my suggestion is talk, remonise, laugh, love and spend as much time with your loved one before they forget who you are.i held my mom's hand until she died, i was so sorry i couldn't help her, but now she's in heaven and at peace. she's my guardian angel now.

I want the world to know 1. this disease is awful 2. this disease shouldnt be wished on your worst enemy 3. this disease needs a cure.