Alzheimer's Phone Problems: Little Object, Big Headaches
By Paula Spencer, Caring.com senior editor

Sometimes it's the little things that get you with Alzheimer's. Phone challenges, for example. Difficulty using the telephone is an early sign of Alzheimer's disease. But even once you already know someone has dementia, phone issues can be an ongoing source of trouble.
Any of the following "ring a bell" in your house?
- Not recognizing the voice on the other end.
Before she died at 99, my grandmother's deafness had made our weekly phone calls harder as the years went on. But between my shouting and repeating, we somehow managed to have a talk that made us both feel good. Then sometime in her early 90s, Alzheimer's disease made her less likely to answer a ringing telephone, and when she did, she didn't always understand who I was. Eventually it got too hard, and looking back, was sadly the factor that changed our relationship most.
- Not recognizing the phone.
Another personal story: My siblings and I began to expect the same drill every time we called home. Moments after answering the phone and saying hi, our mom would say, off to the side in an increasingly agitated tone, "Dear, pick up the phone...no, not that one...that's the TV remote!...no, that's the other TV remote...yes, that one...your daughter's on the phone...." It was funny the first time, and then more and more worrisome as it went on. My dad had then only seemed "forgetful" to us. In his defense, all those black wands with buttons do look a bit alike, but this wasn't a case of occasional misidentification. In hindsight, his telephone confusion was a clear sign of Alzheimer's.
- Not saying anything at all.
Gary Joseph Leblanc, who writes a caregiving column for the Tampa Tribune, deserves a shout-out for bringing up this topic of Alzheimer's phone issues, in a reminiscence about his father. His Dad, who had Alzheimer's, would answer the phone at the bookstore they ran together, and remain completely voiceless before hanging up. When asked who it was, "he'd just nonchalantly respond, 'Heck if I know.'"
- Dialing 911.
LeBlanc also mentions this risk: Lonely people with dementia who dial 911 just to have someone to talk to. (Maybe because it's an easy and ingrained number?) He also mentions his dad randomly punching numbers which led to accidental international calls.
- Picking up the extension to listen in.
Later, when my dad lived with my brother, I'd suddenly notice a raspy breathing while I was chatting with him or his wife. Turns out Dad would sometimes pick up an extension but not announce himself. He wasn't being sly; he simply lacked the wherewithal to join the conversation but liked to listen to us. Of course I always asked to talk to him anyway after I'd get the scoop from my brother, but I learned to ask them to make visual contact on Dad's activity before we discussed any nitty-gritty details about how he was really doing.
- Not taking messages.
Another early-stage problem is that someone might seem to manage phone use just fine – but is incapable of writing anything down or remembering to tell anyone else in the house there was a call.
- Calling randomly and often.
Sometimes people with dementia remember long-dialed numbers (or how to use speed-dial) and fall into a groove of calling an adult child, friend, doctor's office, or some other target over and over, often at inappropriate times, a behavioral tic.
So what can you do?
How to best deal with Alzheimer's phone problems depends on your specific situation. Some ideas to consider:
- Switch to cell-only service, if you live in the same house as someone with Alzheimer's.
- Place phones only in the rooms where the person who has Alzheimer's doesn't go (for example, in your bedroom and in a landing at the top of the stairs).
- Use call-forwarding so that home calls go to your cell.
- Turn down ringers. This may prevent the phone from being answered but not prevent outgoing calls.
- Use caller ID to follow up on who phoned.
- Consider an easy-to-use model like this Memory Phone which has visual-cue buttons so the user can easily dial family members or emergency help (for people in earlier disease stages).
- Another option: a dialless phone, which receives calls but doesn't permit dialing – a possible substitute for those who like to call at all hours.
- Realize that not being able to dial for help or emergency services is not merely a sign of Alzheimer's but a sign that someone may no longer be able to live alone.
Alzheimer's phone problems can be annoying -- and, even more important, dangerous.

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I purchased a device that works as a callerID but is a database (small unit) connected to the phone and answering machine. My mom's problem isn't using the phone-she leaves it alone. My problem was her answering it and giving out inappropriate information. The "Person-to-Person" device holds phone numbers that are allowed to ring to the phone. Anything not in the device database go directly to the answering machine. So very few people get to call direct keeping her from answering the phone. It has worked great for me.
Have a phone where people can call and you can use a speaker phone. It helps and allows people to enjoy hearing peoples voices. Also the special phones with no numbers are greatk like Jitterbug. All they have to do is push one button, ask a live person for a name, and that operator calls it from a list you have given. If they can still answer a phone, when the phone rings, they just open it and talk.
My 80 yr old mother has a problem with the modern cordless phones. She doesn't know how to turn the phone on or off. I found an old type of phone with the cord.One that works when you take it off the cradle and turns off when put it back in the cradle. Remember those? LOL It also comes with a couple of cordless that can be put in my bedroom and office. She's not afraid to answer the phone any more, thank gawd. Cause I like checking on her when I have to be gone.
Thanks Kathy -- your lighter-side insights are one reason you've been in our Caring Currents blogroll for a long time now!
My name is Kathy and I am the full time caregiver for my eighty one year-old Dad who has Alzheimer's and lives with me in North Carolina. When my Mom died in 2004 and Dad moved in with me, I had no idea what to do. But day by day, I found ways to cope, and even enjoy having my Dad with me. So I started writing a blog at www.KnowItAlz.com, which shows the "lighter" side of caring for someone with dementia. After a while, I added over 100 pages of helpful information and tips for caregivers. We even have a Chat room so caregivers can communicate with each other from home. Art and music are a very large part of my Dad's therapy. Please pass this link along to anyone you feel would enjoy it. Thanks! Kathy Hatfield
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My 83-year-old mother with dementia lives with me, and I have recently had to have directory assistance blocked on my phone (which unfortunately also required blocking the ability to make long distance calls). My mother would call directory assistance over and over to get my work number, which is posted right by the phone. Finally one month I received my phone bill and had over $30 of charges to directory assistance. I hated to have to change my phone service, but just couldn't afford to take the chance that she would continue.