5 Ways to Connect With Other Stroke Caregivers

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2 Comments

over 1 year ago

My husband had a stoke on Sept. 3. I have been there every day watching over him through the hospital stay, rehab and drs appt. He has 2 daughters who have done nothing but backstab and cause problems for me. I have asked several times for them to stop because it doesn't help me take care of their Dad but it continues and I don't know what to do. They are going behind my back and telling people I am not taking care of him. Mind you 1 lives out of townand we had barely spoken to her in 8 years and the other one we hardly ever saw in the first place. The stress these two are causing is to much but I don't know how to handle it. Is there anyone that can help?


about 2 years ago

goodMorning, My mother had a stroke at age 50 and my father was her caregiver for many years... until he couldn't do it any longer. (dementia followed) Her stroke was massive, leaving her paralyzed on the right side. She had to learn to talk, walk and do everything with her left hand. (she was right handed). During her struggles I think the most important thing my family had to learn... patience... lots of patience. I remember like it was yesterday, how difficult it was for her to try to form words. Unfortunately, I also remember (in the beginning) trying to help her... it was almost a guessing game. Did this help? absolutely NOT... it upset her more. We had to learn to say nothing and let her take her time, (sometimes a long time) before the words came to her. My mother was a courageous lady, she wanted to do everything herself and she tried up to the end. Yes, she was difficult at times and depressed... I would be too if I were in her shoes. Mother inspired me in many ways... now I am dedicated to helping those who have suffered strokes and have dementia. The hobbies my mother once did, she could no longer do, she could not handle the cards and puzzle pieces.(her favorite hobbies) From observing her struggles, I developed oversized cards and simple puzzles with large pieces. One of my mothers favorite songs she used to sing was "Let me call you Sweetheart" and You are my Sunshine. Check out the Sing a Long - Songs of Yesterday, your loved one will enjoy these activities. takeCare. karen http://memoryjoggingpuzzles.com


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