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My husband(my caretaker) is not comfortable with any form of confrontation. This article might help him understand more of his role as caretaker. The ideas and tips on communicating with medical staff are extremely helpful.
Hi Nordy, I'm sorry to hear about your situation, that must be very stressful. I don't think there any specific places you can find an advocate, you really just need to work with your father's doctor, nurses, or whom ever and have them help as best they can. Maybe you can have a close friend or another relative try to talk to him too? Sometimes the message coming from another source can be helpful. Good luck! -- Emily | Community Manager
How do I find and advocate? he will not listen to me. he need someone else to talk to him thank you About Medicare and other thing He just lives with me as a friend. He needs fine a place to live. I need help and don't know what to do. I have to work. Again thank you so much. I would appreciate some help.
Hugs bristolbab
I wish my mother had had a better relationship with her primary doc (the one who didn't even bother to show up when she wound up in the hospital from an ER visit and then died); maybe he could have warned us this was going to happen; as it was we thought we had been in recovery mode from a cornea transplant although she had just gone in for her refractive exam to get glasses only she still had no sight; we had been warned this could happen with her before but that had upset her so we went ahead with it anyway but in just someone had actually talked to us about all of this maybe we could have enjoyed our last times together better.
This article came at such a good time. The medical center is trying to keep me out of the loop. They have gone behind my back. A so-called social worker called my Sister and asked if she could come to her appointments alone. My Sister has progressive brain-damage as a result of the radiation and chemo treatments for primary brain cancer and is not able to make her own decisions. I do have durable power of attorney for her and they are even trying to circumvent that. I kwow I am not the only one going through this. I am also Deaf and protected under the American with Disabilities Act and they even tried to tell me they only had to provice interpreters for surrogate caregivers. Well I looked up surrogate caregivers and it only means caregivers that work in group homes. Your article meant so much to me. I am going to pass it along to some other friends who are going through similar things.
this part about writing it down is essential. i have materials to help caregivers and patients stay organized, maintain good patient provider communication and make informed choices. you can find out more if you want at www.the-first-step.com
I AM AN RN AND WORK AT A GERO PSYCH FACILITIY AND FIND THIS INFORMATION AND ARTICLES GOOD TO PRINT REVIEW AND SHARE WITH THE PATIENTS. I HAVE TO TEACH A NURSING ED GROUP TWICE A WEEK.