More steps to a diagnosis of Alzheimer's disease

Page 2 of What to Do if You Suspect Alzheimer's Disease in a Loved One

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2. Educate yourself

As soon as you suspect Alzheimer's, invest a little time in getting more familiar with the disease. There are lots of myths about it and plenty of confusion. Having a basic understanding allows you to ask doctors more informed questions and recognize the signs to watch out for.

  • Try not to jump to conclusions. Various types of dementia, as well as other illnesses or situations, may result in changes that mimic signs or symptoms of Alzheimer's disease (such as disorientation and mood swings or personality changes), so you'll need to consult with a qualified physician before determining that it's Alzheimer's. An early diagnosis means that the right medications and lifestyle changes can be made to slow the disease's progress and help preserve independence as long as is practical.
  • Take the Alzheimer's Association's Brain Tour and learn how the brain works and how Alzheimer's affects it.
3. Find and talk with a qualified doctor

With the observations you've made of the person you're concerned about and a basic foundation of knowledge about Alzheimer's, you're ready to consult with a medical professional.

  • Start with his or her regular primary care doctor. This professional is optimal because he's observed your family member over time. But if the doctor doesn't seem particularly knowledgeable about dementia or doesn't seem to be taking your concerns seriously, it's probably time to look for a more appropriate choice, ideally someone with experience in treating dementia. Contact your local Alzheimer's Association chapter, Alzheimer's Disease Center, other Alzheimer's program, or hospital referral system. A geriatrician (a physician who specializes in treating older adults) may be especially helpful.

  • Go along to the office visit. Even if you don't have a history of attending medical appointments, try to arrange to be at this one: "I've been worried about you. Let's make sure everything is all right or see if the doctor can help with that memory problem. I'll come with you because you know they now say it's a good idea for more than one adult to be at all kinds of medical appointments. That way, between the two of us, we'll keep track of everything the doctor says."

  • Be prepared for the appointment. Bring your notebook of observations, including a list of the medications he or she is currently taking, and a list of questions you'd like to ask, as well as his or her medical history if it's a new doctor. Be sure to include a request for referrals to specialists (if necessary) in your list of questions.

  • Arrange for some assistance. If you live far away and can't be there for the appointment, try to make sure someone you all trust accompanies him or her. Ask your loved one to sign a release permitting you to discuss his or her medical records and care with the doctor so you can call directly with follow-up questions after the intermediary gives you a report.
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